Advocacy in Action (April 2024): The Abuse of Antipsychotic Medication

Libby Hastings • April 8, 2024

The latest data from the Long-Term Care Community Coalition paints a troubling picture of the prevalence of antipsychotic drug use among nursing home residents nationwide. Shockingly, over 250,000 residents are being administered these dangerous drugs, often without clinical justification. Antipsychotic drugs are too frequently used as chemical restraints, particularly among individuals with dementia or dementia-related diagnoses. Instead of receiving the services they are entitled to under federal law to live comfortably, residents are being sedated, robbing them of their autonomy and quality of life. 


Antipsychotics are drugs that are used to treat symptoms of psychosissuch as delusions (for example, hearing voices), hallucinations, paranoia, or confused thoughts. They are used in the treatment of schizophrenia, severe depression and severe anxiety. 


In Kansas, the situation is no less alarming. Approximately 117 nursing facilities out of 300 in our state have 20% or more of their residents on antipsychotic medication. CMS Region 7 (serves Iowa, Nebraska, Missouri, and Kansas) had the highest regional rate (24.7%). This misuse of medication not only violates the rights of residents but also puts their health and well-being at risk with potentially severe consequences.


Antipsychotic drugs are associated with a host of adverse outcomes in older adults, including heart attacks, strokes, Parkinsonism, falls, and even death. It is clear that the overuse of these drugs constitutes a serious threat to the safety and dignity of nursing home residents.


Furthermore, the data from the Long-Term Care Community Coalition underscores the need for increased oversight and accountability within the long-term care industry. The fact that non-risk-adjusted data show such a high prevalence of antipsychotic drug use, coupled with a significant increase in potentially fraudulent schizophrenia diagnoses (194% increase between 2015 and 2019), is deeply concerning. 


In the "Final Report of the Kansas Senior Care Task Force to the 2023 Kansas Legislature", the Kansas Senior Care Task Force, consisting of legislative and non-legislative members, recommended leveraging technology to connect highly specialized geriatric psychiatric prescribers across the state for consultation. The task force also recommended improving upon existing standard training and education by providing targeted education for surveyors, direct care workers, providers, prescribers, long-term care providers and caregivers on the use of prescribed psychotropic medication for older adults with dementia or geriatric behavior health conditions. 


We encourage all individuals to utilize the data provided by the Long-Term Care Community Coalition. In the data spreadsheet, you can filter by state and county. 


Thank you for your ongoing support in our mission to advocate for the rights and well-being of those in long-term care.


Alarming Rate of Antipsychotic Drugging in US Nursing Homes


By Libby Hastings • October 19, 2026
KABC Testifies before the Kansas Silver Haired Legislature Kansas Advocates for Better Care (KABC) is urging state leaders to provide additional funding to eliminate the waitlist for the Home and Community-Based Services (HCBS) Frail Elderly (FE) Waiver, which helps older Kansans access the services they need to remain in their homes and communities. In testimony submitted to the Kansas Silver Haired Legislature (KSHL) on October 6 th in Topeka, KABC Executive Director Dan Goodman emphasized the importance of preserving access to in-home care and preventing older adults from entering nursing facilities before they need that level of care. The FE waiver waitlist, implemented July 6, 2026, has already affected hundreds of older Kansans. Without additional funding, more people could face delays in receiving essential services, potentially accelerating health declines and increasing the likelihood of premature nursing home placement. KABC is recommending $31 million in additional funding for the FE waiver in fiscal year 2027 to address projected funding shortfalls and help eliminate the waitlist. Kansas Silver Haired Legislature Sets 2027 Priorities On October 7 and 8, 65 delegates representing regions across Kansas gathered on the floor of the Kansas House of Representatives in Topeka for the Kansas Silver Haired Legislature's annual session. During the session, delegates approved five resolutions outlining their legislative priorities for 2027. The resolutions focus on supporting older Kansans' independence, financial security, access to care and participation in civic life. The five priorities are: Fund senior transportation Protect in-home care Increase funding for the FE waiver to help older Kansans receive care in their homes and communities. KABC supports this priority and is urging the state to add $31 million in funding for fiscal year 2027 to eliminate the FE waiver waitlist. Strengthen Medicaid Raise the Personal Needs Allowance Increase the Personal Needs Allowance for nursing home residents who receive Medicaid Protect senior voting rights These priorities address interconnected challenges facing older Kansans, from accessing transportation and affordable care to maintaining independence and financial security. The Importance of Care at Home The FE waiver was established to help older Kansans access community-based services that allow them to remain in their homes for as long as possible, delaying or avoiding the need for more costly institutional care. These services can make a significant difference in an older adult's ability to maintain independence, health and quality of life. When needed support is unavailable, however, individuals and families may have fewer options for managing care at home. Kansas already faces challenges in this area. According to the United Health Foundation's America's Health Rankings, Kansas ranks 47th in the nation for placing low-care residents in nursing facilities. KABC is concerned that limiting access to home- and community-based services could contribute to further premature institutionalization. The Cost of Delayed Access The potential impact of the waitlist is significant. According to KABC's testimony, the state faces a projected $31 million shortfall for the FE waiver in fiscal year 2027, putting access to critical in-home services at risk. Historical data also illustrate the potential scope of the problem. In 2003, a similar FE waiver waitlist affected approximately 20% of eligible participants. The Kansas Department for Aging and Disability Services (KDADS) reports that 9,306 Kansans are currently eligible for the waiver. Applying that historical 20% figure to today's eligible population suggests that approximately 1,861 older Kansans could be affected in fiscal year 2027. While this estimate is based on a historical comparison, it underscores the potential consequences of insufficient funding. Investing in Older Kansans  The goal is to help older Kansans receive the services they need when they need them, rather than risk declining health or entering institutional care because community-based options are unavailable. As Dan Goodman emphasized in his testimony, investing in home- and community-based services offers an opportunity to support older adults' independence while potentially avoiding the greater costs associated with premature institutionalization. The Kansas Silver Haired Legislature's 2027 priorities provide a framework for addressing the needs of older Kansans across the state. KABC's support for increased FE waiver funding aligns with the Legislature's call to protect in-home care and ensure older adults have meaningful choices about where and how they receive care. KABC will continue advocating for policies and resources that protect older Kansans' access to quality long-term care, wherever they call home.
By Libby Hastings • September 21, 2026
On Thursday, September 10th, KABC hosted our annual caregiver training, with speaker Jessica Clossen, and membership meeting. Over 30 people attended!  The meeting began with a brief introduction to KABC by Libby Hastings, Communications and PR coordinator. Afterward, Karen Weber, KABC Board Vice President, led the membership meeting. During the membership and business meeting, Karen Weber (Vice President), Dave Ranney (Secretary), Rachel Stahle, Dustin Baker, and Deborah Merrill were unanimously voted to retain their current board positions. During the caregiver training portion, Navigation Memory Care: Knowing When It Is Time & How To Choose, Jessica Clossen discussed important tips for navigating memory care, including: The hidden cost of waiting too long and caregiver burnout Defining memory care Memory care transition guidance What to look for in a memory care setting Staffing and training Culture and activities Dining and daily routines We are so incredibly thankful to Jessica for sharing her time and expertize with our attendees. If you'd like to connect with Jessica Clossen, email her at jclossen@dementia-care-consulting.com or call 913-585-5178 . To view the recording of our 2026 caregiver training and membership meeting, please visit our YouTube page here. A copy of the presentation slides is available here .