Advocacy in Action (September 2024): KABC Testifies at the Bob Bethell KanCare Oversight Committee

Libby Hastings • October 1, 2024

On Monday, August 26th, Libby Hastings, Communication and Public Relations Coordinator, had the honor of presenting testimony on behalf of KABC to the Robert G. Bethell Joint Committee on Home & Community Based Services & KanCare Oversight Committee. Our goal was clear: to advocate for the reinstatement of the "Explore Your Options" (EYO) resource guide, a vital tool for older Kansans and their caregivers.

In recent months, our work with the Douglas County Senior Resource Directory has underscored the critical need for a comprehensive resource guide. Since launching the directory, we've seen firsthand how essential it is for older adults to have access to reliable, up-to-date information about the services and resources available to them. The response to our directory has been overwhelmingly positive, with individuals and families expressing their appreciation for a resource that helps them navigate the complexities of long-term care. 


The importance of the EYO guide was highlighted in the Final Report of the Kansas Senior Care Task Force to the 2023 Kansas Legislature. A key recommendation from the Task Force was for the Kansas Department for Aging and Disability Services (KDADS) to reinstitute the EYO guide, which would provide a centralized, accessible source of information for older adults across the state. The guide would be published online and in print, ensuring that those without internet access can still benefit from this essential resource.


The need for such a guide is urgent. As one of the working groups from the Kansas Senior Care Task Force noted, it is critical for older adults and caregivers to know where to access service information and resources when the need for long-term supports and services arises. The lack of access to reliable, accurate information can lead to frustration, confusion, and potentially harmful outcomes for seniors and their families. 


While some areas of the state, like Johnson County and Central Plains, have found ways to create their own versions of the EYO guide, most counties do not have the resources or capacity to do so without state assistance. That’s why we’re asking this committee to encourage and support KDADS in bringing back the EYO guide. By doing so, we can ensure that all older Kansans, regardless of where they live, have the information they need to make informed decisions about their care. 


May 21, 2025
Choosing a long-term care facility for yourself or a loved one is one of the most important decisions you can make. Beyond basic safety and cleanliness, the right facility should support a person’s independence, dignity, and overall quality of life. To help you make an informed choice, here are five essential questions to ask, along with key follow-ups that can give you a deeper sense of what daily life will be like at the facility. 1. How does the facility support independence and person-centered care? Person-centered care means that residents are active participants in their care and daily routines. Ask: Can residents choose when to wake up and go to bed? Are meals and activities tailored to individual preferences? Is there flexibility for “early birds” and “night owls”? Look for signs that staff respect residents’ individuality—such as accommodating dietary preferences and encouraging participation in meaningful activities. 2. What medical and rehabilitation services are available on-site? Quality care goes beyond assistance with daily activities. Ask about: Access to hospice care and pain management Availability of wound care and ostomy specialists In-house physical, occupational, speech, and mental health therapies Staffing levels—how many nurses and aides are on duty at different times of day? These services can have a major impact on recovery, mobility, and comfort. 3. What is the atmosphere like during meals and activities? Daily life should be engaging and social. Ask to observe a meal or an activity session. Consider: Are residents out of their rooms and interacting with others? Do meals look appetizing and meet special dietary needs? Is assistance with eating provided promptly and respectfully? Also ask about field trips, volunteer involvement, and whether there is an active activities room or calendar of events. 4. What do current residents and families say about their experience? Talking to those already living in or visiting the facility can give you valuable insight. Ask residents: Do staff respond quickly when you call for help? Do you enjoy your meals and feel your privacy is respected? Are you involved in decisions about your care? Ask families: Are you promptly notified of any accidents or health changes? Do you feel comfortable raising concerns? Is there a Family Council and does the facility listen to it? 5. How transparent and responsive is the administration? A responsive leadership team is key to resolving issues and maintaining quality. When meeting with the Administrator or Director of Nursing, ask: How do you handle complaints? How are staff trained and how long do they typically stay? What’s your policy on resident rights, such as refusing treatment? You can also ask to review the admission contract, learn about costs and refund policies, and understand how care decisions are made if the resident is unable to speak for themselves. Want more questions to ask? Visit our full guide: Is This the Nursing Home to Choose?  It includes detailed sections on services, nursing care, residents' rights, and conversations to have with administrators, staff, and families. At Kansas Advocates for Better Care, we believe everyone deserves compassionate, dignified, and person-centered long-term care. Asking the right questions is the first step to getting it.
By Lenette Hamm May 1, 2025
Thanks to the dedicated advocacy of KABC and our coalition partners, Kansas has taken a major step forward in improving access to long-term care information. We’re thrilled to share that the Fiscal Year 2026 state budget includes $190,000 in dedicated funding for the creation of a comprehensive statewide senior resource directory , a direct result of our persistent efforts to ensure older adults and their families can navigate care options with confidence and clarity. Language in the approved budget bill reads: “That expenditures in an amount of not less than $190,000 shall be made by the above agency from such account during fiscal year 2026 to create a comprehensive statewide resource directory to provide essential information on long-term care options: And provided further, That such directory shall be accessible in an up-to-date online version as well as in a printable version.” This is a huge win for older Kansans, caregivers, and care professionals , and it builds directly on the success of local efforts like the Douglas County Senior Resource Directory . We know that when people have access to clear, trustworthy information, they are better equipped to make decisions that support dignity, independence, and well-being in aging. We are proud that our voice, and YOURS, was heard. From providing testimony, to meeting with legislators, to amplifying the call for this essential resource, this achievement belongs to all of us who believe that quality care begins with access to information. Next Steps: We’ll be working closely with the Kansas Department for Aging and Disability Services to support the development of this directory and ensure it meets the needs of Kansans statewide, both in print and online. T hank you for standing with us. This is advocacy in action and together, we’re making a difference.