kansas-advocates-for-better-care

The Quiet Crisis

Wed, 25 Mar 2026 14:58:47 GMT

The Quiet Crisis: Antipsychotic Drug Misuse in Nursing Homes

On March 19, 2026, a Washington Post article highlighted a recent Office of Inspector General for the Department of Health and Human Services investigation that brought renewed national attention to a troubling reality inside America’s nursing homes: powerful antipsychotic drugs are being used not as treatment, but as control.

The report found that some facilities are misdiagnosing residents with schizophrenia to justify prescribing antipsychotic medications. These drugs are often not approved for people with dementia and carry serious risks, including falls, strokes, and even death.

In many cases, these medications are used to manage behaviors that are not dangerous, such as calling out, resisting care, or expressing distress. The result is what advocates have long warned about: the use of chemical restraints to sedate residents for staff convenience.

A National Problem Decades in the Making

The misuse of antipsychotic drugs in long-term care has been documented for years.

In April 2024, KABC highlighted this issue in our advocacy work, noting that hundreds of thousands of nursing home residents nationwide are given antipsychotic medications, often without appropriate clinical justification. These drugs carry an FDA “black box” warning for use in older adults with dementia due to an increased risk of death.

Federal efforts over the past decade have aimed to reduce unnecessary use, yet as of early 2026, approximately 17% of long-stay nursing home residents in the United States are still receiving antipsychotic medications. At the same time, recent federal policy discussions in March 2026 have raised concerns among advocates that loosening reporting requirements could reverse progress made in reducing inappropriate use.

Kansas Is Not Immune

This issue hits close to home.

In 2022, the Kansas Legislature’s Senior Care Task Force released a report to the 2023 Legislature identifying the administration of antipsychotic medications and protections against abuse and neglect as critical areas for reform.

The Task Force emphasized that these medications could have serious and even fatal consequences for older adults, particularly when used inappropriately.

Advocates in Kansas have reported that up to 26% of nursing home residents, and nearly 40% of those with dementia, have been prescribed antipsychotic medications in recent years, despite well-documented risks.

While some facilities have made progress, reductions in use have stalled in recent years, raising concerns that systemic issues remain unresolved.

Why It Happens

At its core, the misuse of antipsychotic drugs is often a symptom of deeper systemic problems, many of which have been exacerbated since the COVID-19 pandemic.

Experts and investigators point to:

Chronic understaffing, intensified since 2020
Lack of training in dementia care
Pressure to manage behaviors quickly
Lack of person-centered practices in care
Gaps in oversight and accountability

Non-drug approaches, like personalized care, meaningful activities, and addressing unmet needs, are widely recognized as best practice. But they require time, staffing, and resources that many facilities continue to lack in 2026.

When those supports are missing, medication restraint becomes the default.

What Proper Care Should Look Like

Clinical guidance has long been clear, and yet remains unchanged in 2026.

Antipsychotic medications should be a last resort, used only when:

Non-drug interventions have failed
The resident poses a risk to themselves or others
The benefits outweigh the serious risks

Even then, they should be used cautiously, closely monitored, and regularly reevaluated.

The Path Forward for Kansas

Kansas has an opportunity, and an obligation, to act.

Building on the 2022 Senior Care Task Force recommendations, advocates continue in 2025–2026 to call for:

Expanded access to geriatric mental health specialists
Stronger oversight and enforcement
Improved training in dementia and person-centered care
Greater transparency for residents and families
Meaningful solutions to the ongoing staffing crisis

At its heart, this is about dignity. Older adults in Kansas adult care homes deserve care that respects their humanity, not treatment that silences it.

Legislative Update

Mon, 16 Feb 2026 21:31:10 GMT

KABC has been actively engaged in the Kansas legislative session, providing testimony and monitoring policies that affect older adults, caregivers, and long- term care services across the state.

Opposing a Frail Elderly Waiver Waitlist

KABC provided oral testimony to both the House Social Services Budget Committee and the Senate Ways and Means Subcommittee opposing a proposed waitlist for the Frail Elderly (FE) waiver. We requested $31 million in additional funding to fully fund the waiver. While significant, this request remains modest compared to the roughly $200 million increase to the nursing facility base approved last session. We will continue tracking budget developments, including additional funding proposals affecting the nursing facility industry.

Supported Decision Making (HB 2609)

KABC submitted written-only testimony supporting HB 2609, which would legally recognize Supported Decision Making (SDM) as an alternative to guardianship.

Unlike guardianship, SDM allows adults with disabilities to make their own decisions with help from trusted supporters, preserving independence and dignity. The bill would:

Define roles and establish formal agreements
Provide legal protections for supporters
Create safeguards against abuse
Potentially reduce court involvement and costs

This approach could help courts focus on cases where guardianship is truly necessary while offering Kansans a less restrictive optio n.

Memory Care Standards (HB 2370)

KABC also provided oral testimony supporting HB 2370, which seeks to establish standards for assisted living communities marketing “Memory Care” or “Dementia Care.” The bill aims to improve resident safety, strengthen care quality, and ensure transparency for families seeking dementia services while preventing misleading marketing.

The hearing included supportive testimony from the Alzheimer’s Association and the Kansas Long-Term Care Ombudsman, while industry representatives expressed opposition. The Kansas Department for Aging and Disability Services testified as neutral and requested seven full-time staff positions to help implement and oversee the proposal.

Dementia Training for Guardians (HB 2536)

Finally, KABC submitted written testimony supporting HB 2536, which would strengthen dementia-specific training requirements for guardians. Currently, such training is not required through the Kansas Guardianship Program, despite the complex needs of individuals living with Alzheimer’s disease and other dementias.

Under this bill, the Alzheimer’s Association would provide high-quality dementia training at no cost, removing financial barriers while equipping guardians with essential skills, including:

Understanding dementia-related behaviors
Communicating compassionately with individuals experiencing cognitive impairment
Recognizing signs of abuse, neglect, or exploitation

We will continue to keep you updated as the legislative session continues. Thank you for your continued support as we advocate for older Kansans!

Impact Report 2025

Fri, 30 Jan 2026 16:20:50 GMT

KABC's 2025 Impact Report is Now Available

In 2025, KABC marked a major milestone: 50 years of advocating for the safety, dignity, and rights of older Kansans. Our newly released 2025 Impact Report reflects a year of meaningful progress, powerful advocacy, and deep community connection. This past year, KABC assisted hundreds of residents and families through direct advocacy, strengthened long-term care oversight through legislative work, and expanded access to information with the launch of a statewide senior resource directory in partnership with KDADS. We also amplified resident voices through media coverage, testified before legislative committees, and successfully countered efforts that would have weakened long-term care safety standards.

As part of our 50th anniversary, we brought advocacy into the community with new events like Revving Up Joy, a classic car show connecting residents and neighbors, and a public screening of No Country for Old People , sparking critical conversations about the realities of long-term care in America.

None of this work is possible without the support of our donors, partners, board members, and volunteers. Your commitment fuels our mission and helps ensure older Kansans are seen, heard, and protected.

Read our full 2025 Impact Report here .

Highlights from January KanCare Oversight Committee

Thu, 29 Jan 2026 21:47:54 GMT

Highlights from the Robert G. (Bob) Bethell Joint Committee on Home and Community Based Services & KanCare Oversight

The Robert G. (Bob) Bethell Joint Committee on Home and Community Based Services and KanCare Oversight met on Friday, January 23rd, to hear updates and testimony on the state of long-term care and home- and community-based services (HCBS) in Kansas. The Bethell Committee is a joint committee of House and Senate members and will meet again in April. The committee received presentations from KanCare Managed Care Organizations (MCOs), the KanCare Ombudsman, the Long-Term Care Ombudsman, the Kansas Department for Aging and Disability Services (KDADS), and the Kansas Department of Health and Environment (KDHE), along with individual testimony. Kansas Advocates for Better Care (KABC) provided testimony, delivered by Dan Goodman, Executive Director.

KDADS Updates

KDADS shared updates on workforce capacity, policy changes, and HCBS planning:

Surveyor staffing shortages remain a concern.

Currently, only 7 of 12 state licensed–only surveyor positions are filled. Regional staffing varies, with the Southwest Region having just 3.5 of 6.5 positions filled, highlighting ongoing challenges in timely oversight and enforcement.

Federal Minimum Staffing Standards repealed.

On December 2, 2025, the U.S. Department of Health and Human Services repealed key provisions of the federal minimum staffing standards for long-term care facilities. HHS cited concerns that the rule disproportionately burdened rural and Tribal providers and could limit access to care.

Involuntary discharge data collection.

The FY25 budget includes a proviso requiring KDADS to collect data on involuntary transfers and discharges in state licensed–only adult care homes and report findings to the 2026 Legislature. KDADS shared their updated data on involuntary transfers and discharges from August 2024 to October 2025.

HCBS waiver waiting lists loom.

Public comment is open through February 14 on amendments to the Physical Disability (PD), Frail Elderly (FE), Technology Assisted (TA), and Brain Injury (BI) waivers. Proposed changes would allow waiting lists for the FE, BI, and TA waivers beginning May 1, 2026, if additional funding is not secured.

Community Care Coordination pilot delayed.

KanCare Governance has temporarily waived certain contract requirements for six months while KDADS, KDHE, and MCOs assessed readiness for a Community Care Coordination pilot that has already been funded but not implemented.

Kansas Senior Resource Guide update.

KDADS announced that the Kansas Senior Resource Guide will be published and distributed beginning in the third quarter of State Fiscal Year 2026 and updated annually, being completed in partnership with KABC.

KABC Testimony: Frail Elderly Waiver at Risk

KABC urged the committee to support additional funding for the HCBS Frail Elderly (FE) waiver, warning that projected shortfalls of $30 million ($75.2 million all funds) in FY27 could trigger an imminent waitlist affecting as many as 600 frail elders initially.

KABC emphasized that:

A waitlist would worsen Kansas’s already low national ranking (47th) for low-care residents in nursing facilities.
Delays in services would accelerate health decline for older Kansans who do not have time to wait.
The Legislature added approximately $200 million in annual base funding for the nursing facility industry last session, making targeted HCBS investments a reasonable and cost-effective alternative to premature institutionalization.

Dan also noted that when the FE waiver last had a waitlist in 2003, about 20% of eligible participants were affected. Applying that ratio today could mean as many as 1,700 older Kansans waiting for services. Given that individuals typically remain on the FE waiver for just over three years before transitioning due to death or institutional placement, this population cannot afford prolonged delays.

If a waitlist cannot be avoided, KABC recommended utilizing the $20 million already allocated for Community Care Coordination, which remains unimplemented, to help individuals navigate unmet needs while awaiting waiver slots.

Long-Term Care Ombudsman: Systemic Concerns

The Long-Term Care Ombudsman highlighted persistent, systemic issues impacting residents’ rights and safety, including:

Chronic understaffing and workforce shortages underscore the need for accountability and safe minimum staffing standards.
Facility-initiated discharges, particularly in adult care homes. Concerns include:

Discharges to hospitals or psychiatric units with refusal to readmit.
Deceptive admissions practices around “aging in place.”
Medicaid acceptance claims that result in discharge once private-pay funds are exhausted.
Calls to require Ombudsman notification for all facility-initiated discharges, expand safe discharge definitions, and prevent unsafe placements such as homeless shelters or motels.

Overuse of antipsychotic medications, with recommendations to expand reimbursement for non-pharmacological supports like music therapy, pet therapy, aromatherapy, and massage.
Lack of ownership transparency and problematic ownership relationships.
Need for increased KDADS surveyor staffing.
Resident pharmacy choice violations, including excessive fees charged to residents who choose pharmacies outside of facility contracts.
Insufficient personal needs allowance, limiting residents’ dignity and autonomy.

History of the Bethell Committee

The Bob Bethell Home and Community-Based Services and KanCare Oversight Committee was established during the 2013 session. There was strong agreement among the administration, advocates, and providers that robust legislative oversight was essential to guarantee accountability and transparency for a systems change as large and complex as KanCare. One consumer group said, “legislative oversight of KanCare will be an important tool for achieving the goals of KanCare and for ensuring transparency and accountability for consumers and all stakeholders invested in making KanCare successful."

This committee serves as a vital platform for consumers and providers to raise issues and recommend solutions. It has directed agencies and MCOs to address delays in eligibility, workforce shortages, provider rate parity, waiting lists, and more. This work is only possible through active stakeholder engagement, which helps the committee remain effective, informed, and focused on solutions.

Advocacy in Action (January 2026): Legislative Preview

Fri, 02 Jan 2026 20:39:28 GMT

2026 Legislative Preview

The 2026 session promises to be as fast-paced as last year's. Similar to 2025, leadership has adopted a compressed 90-calendar day session, scheduled to run from January 12 to April 11. Shorter breaks and deadlines will reduce the session by nearly a month.

It’s important to remember that with 125 members in the Kansas House of Representatives and 40 in the Senate, 84 House votes and 27 Senate votes are needed to put measures on the ballot as constitutional amendments or to override a veto. There are 88 Republicans and 37 Democrats in the House. The Senate breaks down to 31 Republicans and 9 Democrats.

Budget

The budget is the legislature's primary constitutional responsibility and will be its major focus. Budget chairs have signaled they are looking to cut $200 million in State General Funds, much of which could be directed at Medicaid. The legislature again plans to draft its own budget rather than using the governor’s as the starting point. From an advocacy perspective, committees will not have lengthy hearings on budget proposals, so it’s important for legislators to hear directly from stakeholders and constituents.

Federal issues, such as the shifting of $50-60 million for Supplemental Nutrition Assistance Program (SNAP) to the state, will compete for funding within the budget discussion. For example, the passage of the federal HR1 shifts approximately $40 million in costs to the state and adds $15-20 million in administrative expenses.

KABC Priorities

At the same time, the State has indicated it needs an additional allocation of $30 million in State General Funds to avoid creating a waiting list for people over 65 who need home and community-based services to remain in their homes. This could affect an estimated 600 older adults who are functionally and financially eligible for the Frail Elderly waiver services.

Avoiding a waiting list for these older adults is a high priority for KABC. We are actively working with a coalition of other stakeholders to advocate for this funding.

KABC continues to advocate for policies that support adequate staffing in adult care homes. Low staffing ratios directly contribute to poorer quality care, such as an increased use of antipsychotic drugs, higher and more severe situations of noncompliance.

Throughout the session, KABC monitors legislation and works with legislators and State policy makers to support person-centered policies and programs while protecting the rights of aging persons and those with disabilities. We encourage you to get acquainted with your elected officials. Your experiences and observations about long-term care in Kansas helps build their knowledge, giving them first-hand information about the needs of the people they serve.

Fixing a Fragmented System

Mon, 29 Dec 2025 16:52:41 GMT

Fixing a Fragmented System: Dementia Care and Support in Kansas

While services exist for older adults with dementia or cognitive impairments and their caregivers, access is fractured, spread across agencies, and contracted to various partners. Funding streams and eligibility rules are not aligned. Families are forced to self-navigate a complex system without a single professional looking out for the older person’s best interest, especially at a time when they are least able to do so. This is particularly true in rural and frontier counties where provider choice is limited, and family caregivers carry most of the burden.

There are existing policies and structural issues that unintentionally limit access to timely, effective, and person-centered support for individuals with dementia or cognitive impairment. Several structural issues limit access: a) State funding and investment prioritize institutional care over community-based services. b) Kansas’s Medicaid eligibility and service authorization processes are fragmented, slow, and rigid, which makes our system difficult to navigate. c) Workforce policies fail to address shortages, particularly in rural and frontier areas, resulting in approved services that, at times, cannot be delivered. These policies were never designed to restrict access, but the cumulative effect does exactly that.

Effective models for supporting individuals with dementia and their caregivers share some common traits: a) Strong community partnerships between Area Agencies on Aging, local providers, and advocacy organizations. b) Care coordination/case management service models that offer a single, trusted professional or point of contact. c) Flexible use of funds to care coordination, that support respite, and resource education. Programs succeed better when they reduce complexity.

The most urgent gaps in services and support are: a) Timely access to services before a hospital stay & discharge. b) Reliable caregiver support, including respite, education, and training. c) Capable direct care workers, particularly in rural communities. Too often, assistance arrives only after families are overwhelmed or burnt out.

Two steps would make an immediate difference in strengthening dementia-capable systems: a) Implement or re-invest in community care coordination to perhaps span across agencies and various funding sources. b) Strengthen the community-based direct care workforce through targeted reimbursement increases tied to community-based and/or dementia-specific training. Both are achievable within existing structures.

Three state-level priorities or investments that would most improve outcomes for older adults living with dementia or other cognitive impairments in Kansas include: rebalancing long-term care funding or investment to better support community-based services, holding systems accountable for outcomes, especially where public dollars are invested and aligning policy, funding, and accountability around what families actually need to succeed at home along with their older family member.

Nursing Home Neglect and Kansas's Surveyor Shortage

Tue, 25 Nov 2025 17:20:19 GMT

A recent KAKE News report highlights how Kansas’s severe shortage of state nursing home inspectors is putting residents at serious risk. Families say long delays in inspections allow neglect to continue unchecked, sometimes with devastating consequences.

One of the most troubling stories comes from Jennifer Hernandez, whose aunt lived at Santa Marta in Olathe. Santa Marta advertises itself as "Luxury Senior Living in Johnson County, KS". A camera Hernandez installed in her aunt’s room recorded her aunt lying on the floor after falling out of bed. Nearly an hour passed before anyone checked on her. In the video, you can see her aunt struggling to get up on her own. Hernandez placed the camera because she was already worried about her aunt’s care.

Sadly, the fall wasn’t the only issue. Her aunt was also found in dirty clothes, had unexplained bruising, and developed an eye infection. Hernandez repeatedly begged the facility to follow her aunt’s care plan, but she was ignored or dismissed.

The family turned to the Long-Term Care Ombudsman’s Office, which can request an investigation by the Kansas Department for Aging and Disability Services (KDADS) state surveyors at the resident's request. These investigations can lead to fines, penalties, or corrective action. In Kansas, complaint investigations can take more than a year to start.

This is especially alarming because surveyors are one of the only independent sources of information the public has about nursing home quality. Their reports are often the only transparent, verifiable records families can rely on when choosing a facility. Surveyors are also one of the few entities with the authority to hold nursing homes accountable when care breaks down.

And Kansas is falling far behind. The state has 303 federally certified nursing facilities, which must be inspected at least every 15.9 months, with a national average of 12 months. Kansas is currently averaging 19.9 months between these mandatory inspections.

In Hernandez’s case, an ombudsman even emailed KDADS, warning that staff had tampered with the camera and that the resident was at severe risk. A state inspector never came. Her aunt later fell again, broke her pelvis, and died days later in severe pain.

While the state’s inspection delays are a major part of the problem, the facilities themselves also bear responsibility. Too often, homes put profits over people, cutting corners on staffing, training, and basic care. But it becomes even harder to push for stronger regulations when facilities aren’t being held accountable for meeting the baseline requirements already in place. When the “ceiling” of what a facility does is the bare minimum required by federal and state governments, residents are the ones who suffer.

Kansas’s inspection workforce is stretched far too thin to enforce even the most basic standards. In July, KDADS had 51 surveyor positions — 28 of them empty. The agency later reduced the total positions to 36 and raised salaries, but still has 13 vacancies. That leaves just 23 surveyors responsible for inspecting and investigating more than 300 nursing homes statewide.

Families, advocates, and ombudsmen agree: until Kansas fully staffs and supports its survey team, neglect will go unnoticed, problems will go uncorrected, and residents will remain in danger.

PEAK Program in Kansas

Thu, 30 Oct 2025 17:08:02 GMT

Peak Program in Kansas

This is a special blog post provided by Jami Boone, Adult Care Homes Quality Program Manager, Kansas Department for Aging and Disability Services

Moving into a nursing home is often seen as a loss—the loss of independence, familiar routines, and personal choice. But in Kansas, the PEAK program is changing that story. Through this pay-for-performance initiative, administered by Kansas State University and the Kansas Department for Aging and Disability Services (KDADS), nursing homes are putting residents at the center of every decision and creating communities where people feel truly at home.

PEAK encourages nursing homes to adopt person-directed care, giving residents control over their daily lives. Participating homes can earn financial incentives—ranging from $0.50 to $3.00 per bed, per day—based on how deeply they implement these practices. But the true value of PEAK isn’t in the funding—it’s in transforming life inside the home, fostering dignity, choice, and joy for residents.

Imagine moving into a new home where you can bring your favorite bedding, chair, and treasured belongings. You don’t have to give up who you are or what you love. Instead, you gain new opportunities, new friendships, and new family connections, along with access to activities you may have thought were out of reach. At the same time, you maintain your existing community roles, personal routines, and comforts, blending familiarity with new possibilities.

Residents in PEAK homes have the freedom to decide how their living space looks and feels, what, where, and when they eat, when they wake up or go to bed, and even which risks they are willing to take. That sense of control and individuality is central to maintaining dignity, identity, and joy, making daily life meaningful and fulfilling.

The benefits extend beyond residents. When staff are empowered to build deep, personal relationships with residents, they stop seeing their work as a job and start seeing it as an extension of home. Staff get to know the people they care for so well that they notice even the smallest changes—whether it’s a favorite meal left untouched or a subtle shift in mood. This heightened awareness allows potential issues to be addressed sooner, improving healing and raising the overall level of care. The bonds between staff and residents not only create a more home-like environment but also foster staff satisfaction, because when work feels like home, people show up fully, care deeply, and make every interaction meaningful.

This mutual respect and compassion ripple outward, creating an atmosphere that families can feel the moment they walk through the door. PEAK homes offer families additional peace of mind, ensuring that when a loved one moves into care, they enter a place that honors their individuality, values their voice, and supports their physical, emotional, and spiritual well-being.

Kansas continues to lead by example, showing that when dignity and choice are prioritized, everyone benefits. PEAK homes aren’t just places to live—they’re places to thrive.

To find a PEAK participating nursing home in your area, visit: https://www.kdads.ks.gov/partners-providers/nursing-facilities-adult-care-home-program/peak-person-centered-care .

For more information about the PEAK program, contact Jami Boone , Adult Care Homes Quality Program Manager, KDADS, at jami.boone@ks.gov or 785-296-0010 .

Note from KABC :

While KABC supports efforts that aim to improve quality of life and person-centered care in Kansas nursing homes, participation in the PEAK program does not necessarily indicate that a facility is consistently meeting those standards in practice. Financial incentives or program participation alone do not guarantee that residents are receiving the care, dignity, and respect they deserve. KABC encourages families and residents to review a variety of quality measures—including inspection reports, staffing levels, and complaint histories—when evaluating long-term care options.

KABC Testifies Before Bethell Committee

Thu, 16 Oct 2025 15:06:12 GMT

KABC Testifies Before Bethell Committee

On Monday, October 13th, Dan Goodman, Executive Director of Kansas Advocates for Better Care (KABC), delivered testimony before the Robert G. Bethell Joint Committee on Home & Community Based Services & KanCare Oversight. His remarks focused on the urgent need to strengthen Kansas’ long-term care system through sustainable funding and workforce investments.

Goodman urged legislators to provide additional funding for the Home and Community-Based Services (HCBS) Frail Elderly waiver , noting projected shortfalls of $27 million in FY26 and $70 million in FY27. Without intervention, hundreds of older Kansans could face placement on a waitlist as early as this fall—delaying access to critical in-home services and increasing the risk of premature institutionalization.

He also highlighted the need to support and stabilize the state’s long-term care workforce by exploring innovative approaches used in other states. For example, New Mexico’s Competitive Pay for Professionals program has helped attract and retain workers by linking higher wages to improved reimbursement rates and accountability measures. Goodman suggested Kansas consider similar models to strengthen its caregiving workforce and ensure providers can offer competitive pay.

KABC remains committed to advocating for policies that promote quality care, protect older adults, and sustain a strong, well-supported caregiving system across Kansas.

Read KABC’s full testimony here: View Testimony (PDF)

Watch a full recording of the committee here: YouTube Link

Legislative Update: Nursing Home Oversight in Kansas

Mon, 06 Oct 2025 16:45:35 GMT

Legislative Update: Nursing Home Oversight in Kansas

On October 1st and 2nd, the 2025 Special Committee on Health and Social Services met, with the first day devoted to nursing home surveying and credentialing. The joint committee of both House and Senate members heard from the Kansas Department for Aging and Disability Services (KDADS), the Long-Term Care Ombudsman, industry representatives from Kansas and out of state, administrators, and contractors. Notably absent were the voices of consumers, their family members, and facility staff , the people most affected by long-term care policy.

The committee heard information about:

Survey Backlogs and Staffing Challenges

KDADS contracts with the federal government to inspect adult care homes for health and safety compliance. KDADS has struggled for years to meet federal requirements, due in large part to recruiting and retaining nurse surveyor positions. More than half of the 60 approved positions were vacant earlier this year. As a result, Kansas currently averages 19.9 months between nursing home inspections , far beyond the federal requirement of 12-15.9 months. With just over 300 federally licensed facilities in the state, timely inspections are critical to protecting residents.

To address this, KDADS eliminated 15 vacant positions and raised starting pay: up to $60,000 for multidisciplinary surveyors and $67,000 for RNs . The agency is also considering incentives to encourage more RNs to work as surveyors.

Kansas has one of the highest rates of the most serious deficiencies, known as Immediate Jeopardy (IJ) deficiencies, in the nation , citations for situations where resident health and safety are at serious risk. The committee explored the possibility of privatizing the survey process.

Resident Rights at Risk

Testimony also revealed troubling practices in some nursing homes, including charging residents $200–$300 per month in “pharmacy provider” or “medication set-up” fees if they choose to use an outside pharmacy. This practice undermines residents’ right to choose their own providers and unfairly penalizes private-pay residents, already shouldering an average of $7,000–$8,000 per month in nursing home costs.

Involuntary Discharges and the Ombudsman’s Recommendation

The Long-Term Care Ombudsman urged lawmakers to expand discharge reporting requirements.

As she noted:

“Federal regulations require a notice to be sent to our office for a facility-initiated transfer (involuntary discharge) in federally licensed nursing homes, but that is not the case for state licensed homes, assisted livings, home pluses and residential health care facilities. With the help of our office, we can often help resolve the reason for the discharge notice to prevent a resident transfer or support the resident to ensure a transition occurs safely.”

The committee heard concerns from representatives of the nursing home industry and decided to delay making a recommendation on this issue, noting that additional information is needed.

KABC has advocated for not only strengthening the reporting requirements but also giving residents of assisted living facilities the same right to appeal an involuntary discharge that nursing home residents enjoy.

Raising the Personal Needs Allowance

The Personal Needs Allowance (PNA) for nursing home residents is a monthly stipend that Medicaid recipients can use for personal expenses. In Kansas, the PNA is just $62 per month. Many residents express concern that this amount is insufficient to cover basic personal expenses such as haircuts or undergarments. An immediate increase to the allowance is needed, along with an ongoing adjustment to keep pace with rising costs. The Long-Term Care Ombudsman recommended a PNA increase to the national average of $72 with an additional annual Cost of Living Adjustment.

KABC’s Position

KABC will continue to advocate for:

• Strong oversight of nursing homes.

• Resident rights protections, including freedom of choice in providers.

• Central inclusion of residents and staff voices in all policy discussions.

You can watch the hearing on the Kansas Legislature’s YouTube channel here .

KABC will continue to monitor these conversations closely as the 2026 legislative session approaches.

Clearwater Nursing Center Cited for Serious Deficiencies

Mon, 06 Oct 2025 14:18:42 GMT

Clearwater Nursing Center Cited for Serious Deficiencies, Including Resident Sexual Abuse

KABC routinely reviews nursing home inspection reports to help families stay informed and advocate for safe, quality care. A recent inspection of Clearwater Nursing Center, Clearwater, completed in September 2025, uncovered serious deficiencies, including a substantiated case of resident-to-resident sexual abuse .

Key Findings from the Inspection

Inspectors documented multiple failures at Clearwater Nursing Center:

Failure to protect residents from sexual abuse. The report describes an incident where a resident sexually assaulted another resident. Staff failed to ensure adequate supervision and safeguards, resulting in direct harm. Protecting residents from abuse is one of the most basic obligations of any nursing facility.
Delayed and inadequate response to the abuse incident. Staff did not act quickly enough to separate residents, report the incident, or ensure proper protections were in place afterward.
Medication administration errors. Inspectors found lapses in following physician orders and proper procedures for giving medications, creating unnecessary health risks.
Inadequate infection control practices. Staff did not consistently follow hand hygiene and PPE protocols, exposing residents to preventable infections.
Poor care planning and follow-up. Care plans were not updated to reflect residents’ changing needs, leaving them vulnerable to gaps in treatment and support.

The Facility’s Right to Appeal

Clearwater Nursing Center has the right to appeal these findings. Facilities may contest deficiencies if they believe inspection results are inaccurate. However, while the appeal process unfolds, these serious deficiencies remain on record and available to the public.

Why This Matters

No resident should ever experience abuse, neglect, or unsafe conditions in a nursing home. Federal regulations are in place to protect the health, dignity, and rights of older Kansans. When facilities fail to meet these standards, residents pay the price.

At KABC, we stand firmly with residents and families. We advocate for stronger protections, more effective oversight, and a long-term care system that prioritizes people over profits. Families deserve to know when problems occur, and residents deserve to live in environments where they are safe from harm.

For those who want to learn more, inspection reports are available through the Kansas Department for Aging and Disability Services. A copy of the report mentioned above can be found here . KABC is also here to help families understand deficiencies and take action to advocate for their loved ones.

KABC Hosts 2025 Caregiver Training

Thu, 25 Sep 2025 15:26:31 GMT

Safe at Home: Fall Prevention Strategies for Caregivers

Kansas Advocates for Better Care hosted our annual Caregiver Training and Membership Meeting on September 18, 2025, featuring guest presenter Katie Tipton, COTA/L, Director of Business Operations at askSAMIE . Katie shared practical fall prevention strategies to help caregivers support older adults in maintaining independence and safety at home.

Falls are the leading cause of injury and death for older Americans. More than one in four adults age 65+ experiences a fall each year, leading to over 3 million emergency department visits, 800,000 hospitalizations, and 32,000 deaths annually.

Beyond the statistics, falls can also create a lasting fear of falling, which further limits independence and quality of life.

Katie’s presentation highlighted:

Understanding fall risks – from muscle weakness and balance issues to medication management and environmental hazards.
Simple home modifications – such as removing loose rugs, improving lighting, and adding grab bars in the bathroom, where most falls occur.
Caregiver roles – observing changes in mobility, encouraging safe habits like supportive footwear, and assisting with strength and balance exercises.
Resources and adaptive equipment – including shower chairs, walkers, rollators, and occupational therapy home assessments.

By taking these steps, caregivers can play a vital role in reducing fall risks, helping older adults stay safe, independent, and engaged in daily life.

For those who were unable to attend, a recording of the training is available here , and Katie’s slides are available.

If you have additional questions regarding this year's training topic, please contact Katie at katie@asksamie.com.

During the business meeting, Molly Wood (President), Barbara Braa (Treasurer) & Deborah Merrill were unanimously voted in to retain their current board positions. There were no recommendations from the floor. Executive Director Dan Goodman discussed KABC’s legislative accomplishments for 2025.

Advocacy in Action (September 2025): KABC Testifies on FY26 Budgets

Wed, 03 Sep 2025 17:09:30 GMT

Dan Goodman, KABC Executive Director, recently provided testimony to both the Kansas Department for Aging and Disability Services (KDADS) and the Kansas Department of Health and Environment (KDHE) during their Fiscal Year 2026 budget hearings. Our message was clear: Kansas must invest in systems that protect the dignity, independence, and well-being of older Kansans.

Key Recommendations from KABC

Protect Access to In-Home Services

• Projected shortfalls of $27M in FY26 and $70M in FY27 threaten the HCBS Frail Elderly Waiver.

• Without funding, older Kansans may face a waitlist for services, leading to premature nursing home placement.

Strengthen Care Coordination

• Frail Elderly, Physically Disabled, and Brain Injury waiver recipients currently lack dedicated case management.

• KABC urged implementation of the long-overdue $20M Community Care Coordination Service.

Improve Oversight & Resident Protections (KDADS)

• Surveyor vacancies are near 50%, delaying inspections and weakening resident protections.

• We called for wage increases and innovative staffing models to close gaps in oversight.

Increase the Personal Needs Allowance

• Nursing home residents in Kansas receive only $62/month for personal expenses.

• KABC supports raising this allowance—closer to the $70 national average—and tying it to cost-of-living adjustments.

Continue the Statewide Senior Resource Guide (KDADS)

• KABC requested $150,000 to maintain and distribute the statewide guide annually.

• This investment ensures older Kansans have access to accurate, trusted information on care and services.

Why It Matters

By 2030, more than 20% of Kansans will be age 65 or older. Budget decisions made today will directly impact whether older Kansans can age with dignity, safety, and independence.

Read KABC’s full testimonies to KDADS here and KDHE here .

Facility #2, 3, 4, and 5, Interview with Steve

Tue, 02 Sep 2025 17:45:43 GMT

In-person interview with Steve

Facility #2, 3, 4, and 5

So, my oncologist did not discover I had a tumor until it was 15 pounds, and it was too much for them to handle. They referred me to a hospital who in turn referred me to a medical center and I had to be approved by a committee of 5 doctors there because of the advanced tumor and my age. They finally agreed that they would do surgery, and four doctors took 7 hours to remove the 15-pound tumor, my prostate and my bladder. Then I was at a facility for 11 months for rehab, then I moved to [facility #2] closer to home where I was a resident for well over a year. Unfortunately, at that facility as I reported to KABC earlier, there were some very serious medicine mix-ups. I called it to their attention and management and the final straw was when a 4 pm in the afternoon and a med tech came in my room and said “Steve, why did you order these COPD medicines, you’re not sneezing, you’re not coughing, you’re not congested” and I said, “I didn’t order them” and he responded that a nurse called and ordered them that morning. I then responded, “I didn’t see a nurse today”. What happened was that someone on staff at that facility #2 did an exam of a different patient and then called it in to my pharmacy and my doctor; it was a total mix-up. And that previous month, I had 3 medication mix-ups in my daily medication that had to get straightened out. The thing is, I’m not in rehab, I’m on Hospice and I’m counting on the organization to take care of me.

So, I left there and went to a different facility (facility #3). I was there for 27 or 28 days, and it was really very depressing because the place is dark: it’s not well managed. The manager had no training in facility’s management, or restaurant management. At facility #3, I was probably 25 or 30 feet from the kitchen; I got cold food every day. Most of the people there were what I would say as post-vocal. They are mainly silent. A lot of them grumbled to themselves. They don’t have the energy to say, “hey, take this food back” or “I want it warmed up”. Some of them don’t have any advocates. In that facility, I found out that they had very weak nursing staff. When I say “weak”, I would say, poorly trained. At least two of the nurses were impaired and I had two or three meetings with top management there to explain things. Even simple things like they had the kitchen door put on backwards. People kept bumping into each other, I mean it was so silly. The other thing is, as an example, the cake, you had to cut it with a knife and fork because it was so hard. I said to the director, “can’t you please follow the recipe on the box or bag about how to make a cake?” and it never came out any better. The place lacked good maintenance. Because of the food and the staffing issues, I left and went to another facility (facility #4).

Download Full Interview

Facility #1, Interview with Sabrina

Mon, 04 Aug 2025 19:37:15 GMT

Phone interview transcript with Sabrina

Facility #1

Well, right before the pandemic, my mom decided—and thankfully, she was very open and frank with her abilities and with us about what her abilities were—she felt that she was no longer able to live independently. My parents are divorced; they have been for quite some time. So she had been living on her own at least 15, probably 20-plus years.

We moved her into assisted living first, and that was in February of 2020, so right before everything shut down. Everything was marching along quite well. You know, we would have periodic visits with her when we were in town.

At some point, she started having more frequent falls where staff would find her on the ground, or she wouldn't necessarily report that she fell. I guess that was also what we were told—which I do believe might be the case. Once she had several falls like that, and those were happening more frequently, she was requiring more care. As a result, she wound up hospitalized.

And this is where it kind of gets interesting, because having some background in the medical field, I didn't really see exactly, medically, what was putting her in the hospital. But anyway, she was hospitalized, and I already saw it coming from afar. I knew that she was not going to be able to go back to assisted living. I could just feel it. That, again, is from some of my previous experience working in hospitals. I mean, I knew—I knew what was going to happen. I knew that the reason why they wanted to hospitalize her, or what I felt was the reason, was so that they could transition her to long-term care and no longer have her in assisted living.

And it's true—she really was probably ready to be in long-term care. She was certainly becoming more dependent, less mobile, and so forth.

Fast forward, I get a call: “She's going home on this Wednesday, and you need to figure out where she's going to go, because she can't come back here (to the assisted living facility).” I mean, it was rather abrupt. If I did not have the knowledge that I had, I would have been completely taken off guard. Like, “Wait, what are you talking about?” You didn't leave this conversation in a way that would let me feel that we were getting to this point. There were a couple of allusions to that, but nothing that I felt, in my eyes, was a direct type of communication—like, “Hey, you know the hospitalization was going to be the trigger to transition.”

That was very stressful, especially living afar. I quickly flew in, and I wound up selecting the nursing home that I did for a couple of reasons. A) She was already in the “system” (of facility #1), and so that sort of limited us. While I did feel that my mom did a lot to prepare financially for this time—taking out long-term care insurance when she was probably my age (I'm 53, so she maybe even started paying for it earlier)—she was definitely ready to be able to finance long-term care.

I selected facility #1 because I loved that it was smaller. That was one of my big things. When I toured it, the staff were quite receptive to talking to me, and the folks who were in charge then (and are no longer in charge now)—I mean, I don't even know how many times the leadership has changed in that regard, but I think it's been quite a few times. The nurses who were there are not necessarily the nurses that are there now. There's at least one I know of who is still there.

So that's pretty much how we arrived at facility #1. And I guess that was—I think—in 2022 or 2023.

Download Full Interview

Inside Kansas Nursing Homes: Through the Eyes of the Experts

Thu, 31 Jul 2025 17:22:27 GMT

Inside Kansas Nursing Homes: A Special Series Returns in Honor of KABC’s 50th Anniversary

In celebration of Kansas Advocates for Better Care’s 50th anniversary, we are proud to reintroduce a powerful special series from our early days as Kansans for Improvement of Nursing Homes. Originally launched in the mid-1980s, Inside Kansas Nursing Homes: Through the Eyes of the Experts offered an unflinching look at nursing home care across Kansas, as observed by those who know it best: the relatives, friends, residents, and caregivers of residents.

Now, nearly four decades later, we are bringing this vital series back, with the same grassroots spirit and commitment to truth. This first issue of Volume One marks the beginning of our updated report on the current state of nursing home care in Kansas, informed by the honest voices of frequent visitors who witness daily life inside these facilities.

Since April 2025, we have been gathering recorded and transcribed conversations with individuals who care deeply about their loved ones in long-term care. These candid reflections are edited to preserve confidentiality—identifying details are removed, names are changed, and nursing homes are referred to by assigned numbers and regions. Mentions of facilities in passing are designated with alphabetical letters (e.g., Nursing Home A).

Over the next year, we aim to gather insights on at least 40 to 50 percent of Kansas’s 305 nursing homes. Volume One of this series, covering roughly 40 homes, will be released in serial form over the coming weeks.

Through these voices, we invite readers to reflect, question, and advocate, just as we did in the 1980s. Because meaningful change begins when we listen.

Advocacy in Action (August 2025): Fire Safety Saves Lives

Thu, 31 Jul 2025 15:44:38 GMT

On a July night in Massachusetts, flames tore through Gabriel House , an assisted living facility. The fire claimed the lives of nine residents and injured more than 30. Survivors described heartbreaking scenes: residents leaning out of windows, screaming for help as staff members fled. Many were rescued only by the bravery of firefighters, neighbors, and police officers who broke down doors and carried people to safety.

Despite the building having a sprinkler system, fire drills had not been conducted, elevators were broken, and residents with mobility limitations were trapped.

A field supervision with Massachusetts’s long-term care ombudsman pled with the state to investigate Gabriel House’s faulty elevator. He was met with excuse after excuse.

In 2024, a fire at Brandon Woods senior living facility in Lawrence, Kansas forced the evacuation of 85 residents. Dense smoke filled the structure, and a passerby was the first to call 911 and begin evacuating residents. Mutual aid from surrounding counties was called in, and a Lawrence police officer was hospitalized for smoke inhalation. Thankfully, no residents were hurt — this time.

These two incidents tell a clear story: fire safety inspections and emergency preparedness are not optional. They save lives.

And yet, during the 2024-2025 legislative session, a bill was introduced in the Kansas Senate that would have eliminated minimum fire safety standards for 720 adult care homes and provider locations across the state. Senate Bill 276 (SB 276) would have removed the authority of the State Fire Marshal to inspect these facilities or enforce compliance , a move KABC calls a recipe for disaster.

KABC strongly opposed SB 276 because it would have stripped the State Fire Marshal of its vital role in inspecting facilities, identifying hazards, and ensuring life safety codes are followed. While the bill allowed for the Kansas Department of Aging and Disability Services (KDADS) to contract with the Fire Marshal’s office, it did not require it, leaving oversight optional and dangerously unclear.

Worse still, KDADS is already chronically understaffed. Its surveyors, who are not trained in fire safety, are struggling to meet existing inspection requirements, often with only half the staff needed.

By contrast, State Fire Marshal inspectors are specifically trained to identify fire code violations and help facilities improve safety before tragedy strikes

Fire and burns are the sixth leading cause of death for older adults in the U.S. In long-term care settings:

Cooking is the leading cause of fires (72%)
Faulty appliances and electrical systems follow closely
Smoking remains the leading cause of death from fires

Due to diligent oversight, Kansas has had only two fire-related deaths in adult care homes over the past decade . That record could be reversed if oversight is weakened.

Families who entrust care homes with their loved ones do so with the belief that these facilities are regularly inspected, meet state and national safety codes, and are prepared for emergencies.

At KABC, we believe every older adult deserves safe, dignified care and that includes protection from preventable tragedies like fires. As we approach the 2026 legislative session, we anticipate this dangerous proposal could return and we’ll be prepared.

"Revving Up Joy" Car Show Celebrates Classic Cars and Community Connection

Tue, 24 Jun 2025 18:55:31 GMT

Kansas Advocates for Better Care (KABC) hosted its first-ever community car show this month, and we’re still riding high from the energy, joy, and connections sparked at the event. Despite a little Kansas rain, 28 beautiful classic cars and over 200 attendees came out to celebrate.

We were thrilled to welcome residents from both Pioneer Ridge and Presbyterian Manor, who joined alongside their families, caregivers, and community members to admire the lineup of vintage vehicles. The car show was part of our 50th anniversary celebrations, and we couldn’t think of a better way to bring generations together for fun, fresh air (a little drizzle), and conversation.

We gave away over $100 through our 50/50 raffle , raffled off three gift cards and a car banner (each paired with a KABC t-shirt), and awarded four standout cars:

Oldest Car – 1917 Dodge Roadster
KABC’s Choice – 1937 Buick
Resident’s Choice – 1955 Chevy Bel Air
Best in Show – 1971 Ford Mustang Mach 1

None of this would have been possible without our outstanding planning committee , especially Max and Dalton , who helped steer every detail from concept to execution. We also want to give a heartfelt shout-out to our volunteers— Garrett, Richard, and Kurt —for helping during the show, and to our dedicated board member Barbara Braa , who stayed for the entire event to lend a hand.

Special thanks to our generous event host, Rev City Church , for providing the perfect space to showcase these cars and connect with our community.

We’re also deeply grateful to our event partners:

O’Reilly Auto Parts and Audio-Reader Network , for setting up booths, handing out free goodies, and powering through the downpour
ThisN’That-LFK , for serving up delicious food and drinks to keep spirits high
Douglas County Community Foundation , whose support made this event a reality
Our giveaway sponsors: Summit Racing Equipment, Stoner Car Care, Gateway Classic Cars, and EATON Detroit Spring – thank you for helping us create a memorable experience for all

From the rumble of vintage engines to the smiles shared between residents and car enthusiasts alike, this car show reminded us why community connection is so vital—especially for those in long-term care.

We’re already looking ahead to next year’s show. Until then, thank you for celebrating 50 years of advocacy, community, and care with us.

Advocacy in Action (June 2025): One Investigator, 70 cases, APS is Stretched Too Thin

Thu, 29 May 2025 14:32:42 GMT

In a recent article published by The Beacon, reporter Blaise Mesa spotlights a heartbreaking case that exemplifies both the critical importance and serious strain facing Kansas Adult Protective Services (APS). The article, “One elder abuse investigator has 70 cases. Kansas doesn’t say how swamped other caseworkers are,” tells the story of Shirley Crow, an 85-year-old woman with Alzheimer’s whose family trusted a caretaker to manage her daily medications and appointments. That trust was broken.

Despite filing a report with APS, Shirley’s family received few updates. Weeks after their report, Shirley passed away. Her case remains open—one of 10,000 APS investigations initiated in Kansas each year. The assigned APS caseworker? She has 70 other cases.

This is not a story about blame. As Shirley’s daughter-in-law, Stacy Crow, told The Beacon , “We got an investigator that I truly believe has a heart… I understand they have an overwhelming demand… I don’t fault them. I just want things to change.”

And so do we.

Systemic Overload and the Urgent Need for Reform

The Kansas Department for Children and Families (DCF), which oversees APS, has not publicly disclosed average caseloads. While DCF clarified post-publication that they do track this information, they choose not to release it, citing confidentiality. The lack of transparency and standardization prevents meaningful accountability and reform.

National standards suggest 20–25 cases per worker is a manageable caseload. Kansas APS staff, in some cases, are handling double or triple that amount. With cases increasing year over year— 18,056 in fiscal year 2025 alone—the risk of delayed intervention or missed warning signs only grows.

This Is a Wake-Up Call.

At KABC, we continue to push for better protections for older adults, more robust support for APS investigators, and greater transparency and accountability from state agencies.

In our recent blog post, “ What Happens When You Report to Adult Protective Services? ” we outline the crucial role APS plays in protecting vulnerable adults and how reporting suspected abuse can quite literally save lives.

To report suspected abuse, neglect, or exploitation of a vulnerable adult in Kansas:

For older adults living at home in the community or in facilities licensed by the Kansas Department of Aging and Disability Services when the perpetrator is not a resident of or staff of the facility, report to the following:

Adult Protective Services (APS): 1-800-922-5330
If an emergency, call your local law enforcement agency or 911

Reporting initiates a multi-step process involving a prompt in-person visit, interviews, and, when needed, development of a service or prevention plan. The goal of APS is to protect, not to punish- to connect individuals to medical care, housing, legal services, or safety planning.

But APS cannot fulfill that mission if it's underfunded, overwhelmed, and operating in the dark.

What Needs to Change:

Transparency: Kansas must publicly release average caseload data and investigation timelines.
Support for APS Workers: State leaders must prioritize hiring and retaining qualified APS staff and ensure manageable caseloads.
Federal Investment: Continued and expanded federal funding for APS is essential—not optional.
Public Awareness: Communities need to understand when and how to report suspected abuse, and how they can be part of the safety net.

The APS system should be a lifeline, not a last resort.

5 Questions to Ask When Choosing a Long-Term Care Facility

Wed, 21 May 2025 02:25:58 GMT

Choosing a long-term care facility for yourself or a loved one is one of the most important decisions you can make. Beyond basic safety and cleanliness, the right facility should support a person’s independence, dignity, and overall quality of life. To help you make an informed choice, here are five essential questions to ask, along with key follow-ups that can give you a deeper sense of what daily life will be like at the facility.

1. How does the facility support independence and person-centered care?

Person-centered care means that residents are active participants in their care and daily routines. Ask:

Can residents choose when to wake up and go to bed?
Are meals and activities tailored to individual preferences?
Is there flexibility for “early birds” and “night owls”?

Look for signs that staff respect residents’ individuality—such as accommodating dietary preferences and encouraging participation in meaningful activities.

2. What medical and rehabilitation services are available on-site?

Quality care goes beyond assistance with daily activities. Ask about:

Access to hospice care and pain management
Availability of wound care and ostomy specialists
In-house physical, occupational, speech, and mental health therapies
Staffing levels—how many nurses and aides are on duty at different times of day?

These services can have a major impact on recovery, mobility, and comfort.

3. What is the atmosphere like during meals and activities?

Daily life should be engaging and social. Ask to observe a meal or an activity session. Consider:

Are residents out of their rooms and interacting with others?
Do meals look appetizing and meet special dietary needs?
Is assistance with eating provided promptly and respectfully?

Also ask about field trips, volunteer involvement, and whether there is an active activities room or calendar of events.

4. What do current residents and families say about their experience?

Talking to those already living in or visiting the facility can give you valuable insight. Ask residents:

Do staff respond quickly when you call for help?
Do you enjoy your meals and feel your privacy is respected?
Are you involved in decisions about your care?

Ask families:

Are you promptly notified of any accidents or health changes?
Do you feel comfortable raising concerns?
Is there a Family Council and does the facility listen to it?

5. How transparent and responsive is the administration?

A responsive leadership team is key to resolving issues and maintaining quality. When meeting with the Administrator or Director of Nursing, ask:

How do you handle complaints?
How are staff trained and how long do they typically stay?
What’s your policy on resident rights, such as refusing treatment?

You can also ask to review the admission contract, learn about costs and refund policies, and understand how care decisions are made if the resident is unable to speak for themselves.

Want more questions to ask?

Visit our full guide: Is This the Nursing Home to Choose?

It includes detailed sections on services, nursing care, residents' rights, and conversations to have with administrators, staff, and families.

At Kansas Advocates for Better Care, we believe everyone deserves compassionate, dignified, and person-centered long-term care. Asking the right questions is the first step to getting it.

Advocacy in Action (May 2025): Statewide Senior Resource Directory Secured in FY 2026 Budget!

Thu, 01 May 2025 18:01:47 GMT

Thanks to the dedicated advocacy of KABC and our coalition partners, Kansas has taken a major step forward in improving access to long-term care information. We’re thrilled to share that the Fiscal Year 2026 state budget includes $190,000 in dedicated funding for the creation of a comprehensive statewide senior resource directory , a direct result of our persistent efforts to ensure older adults and their families can navigate care options with confidence and clarity.

Language in the approved budget bill reads:

“That expenditures in an amount of not less than $190,000 shall be made by the above agency from such account during fiscal year 2026 to create a comprehensive statewide resource directory to provide essential information on long-term care options: And provided further, That such directory shall be accessible in an up-to-date online version as well as in a printable version.”

This is a huge win for older Kansans, caregivers, and care professionals , and it builds directly on the success of local efforts like the Douglas County Senior Resource Directory . We know that when people have access to clear, trustworthy information, they are better equipped to make decisions that support dignity, independence, and well-being in aging.

We are proud that our voice, and YOURS, was heard. From providing testimony, to meeting with legislators, to amplifying the call for this essential resource, this achievement belongs to all of us who believe that quality care begins with access to information.

Next Steps: We’ll be working closely with the Kansas Department for Aging and Disability Services to support the development of this directory and ensure it meets the needs of Kansans statewide, both in print and online.

T hank you for standing with us. This is advocacy in action and together, we’re making a difference.

Understanding the Special Focus Facility Program

Mon, 21 Apr 2025 14:12:44 GMT

Understanding the Special Focus Facility (SFF) Program: What Families Need to Know When Choosing a Nursing Home in Kansas

When searching for a nursing home for a loved one, families often look for a place that will offer safe, reliable, and compassionate care. One important—but often overlooked—resource that can help inform that decision is the Special Focus Facility (SFF) Program , managed by the Centers for Medicare & Medicaid Services (CMS).

What Is the Special Focus Facility (SFF) Program?

The SFF Program was created by CMS to address the most persistent quality problems in nursing homes across the country. Every nursing home that accepts Medicare or Medicaid is regularly inspected to ensure it meets health and safety standards. Most nursing homes will have a few issues identified during these inspections—typically six to seven deficiencies on average—but some facilities consistently fall far below acceptable standards.

These nursing homes:

Have twice as many deficiencies as the average facility,
Have more serious issues , including those that cause actual harm to residents,
And show a long-term pattern of poor performance over a span of about three years.

Facilities like these may fix issues temporarily, but often fail to address the root causes—resulting in a harmful cycle of repeated violations. That’s where the SFF program comes in.

How the SFF Program Works

CMS uses inspection data to score nursing homes based on both the number and severity of their deficiencies. Facilities with the highest scores (i.e., the most and most serious problems) are added to a list of SFF candidates .

Each state is allowed only a limited number of active SFFs at a time—currently, only 88 facilities nationwide can be enrolled in the program. However, CMS maintains a much longer list of SFF candidates that also meet the criteria but haven't yet been selected for the program due to space limits.

Once a facility is chosen as an active SFF:

It is inspected every six months instead of the usual once a year.
It may face progressive enforcement , such as financial penalties or losing eligibility for Medicare and Medicaid.
It must show real, lasting improvements to graduate from the program.

A facility "graduates" from the SFF program only after it has two consecutive inspections (after being named an SFF) with no more than 12 relatively minor deficiencies and none at a higher severity level. If a facility continues to have serious violations, CMS may consider terminating its participation in Medicare and/or Medicaid.

Why This Matters to Kansas Familie s

Being informed about a nursing home’s history can help protect your loved ones. Facilities in the SFF program—or on the candidate list—have serious quality concerns. While some may be working hard to improve, others may continue to struggle with systemic issues that put residents at risk.

As of March 2025, the following nursing homes in Kansas are included in the Special Focus Facility (SFF) program:

Excel Healthcare and Rehab Topeka (recently closed)
Access Mental Health (Peabody)

The following facilities in Kansas are currently on the SFF candidate list :

Clearwater Nursing and Rehabilitation Center
Good Samaritan Society- Liberal
Kearny County Hospital Long-Term Care Unit
Legacy at College Hill (Wichita)
Legacy on 10th Avenue (Topeka)
Medicalodges Jackson County
Medicalodges Post Acute Care Center (Kansas City)
Meridian Rehabilitation and Health Care Center (Wichita)
Riverbend Post Acute Rehabilitation (Kansas City)
Tanglewood Nursing and Rehabilitation (Topeka)

The following facilities graduated from the SFF program:

Advena Living of Cherryvale
Life Care Center of Osawatomie

Anew Healthcare Oxford is a facility that is no longer participating in the Medicare and Medicaid Program.

We encourage families to take time to research and ask questions when considering a nursing home. You can access the full national SFF and candidate list on the CMS website here . KABC offers free unbiased Consumer Information Reports on all licensed adult care facilities in Kansas, helping you make an informed choice when deciding between long-term care options.

Final Thoughts

The Special Focus Facility Program exists to push underperforming nursing homes to do better—but it’s also a signal to the public. When selecting long-term care, knowing whether a facility is on this list can be an important part of making the best choice for your loved one.

If you have questions about how to find quality nursing home care in Kansas or want help understanding a facility’s inspection history, don’t hesitate to reach out to our team.

Advocacy in Action (April 2025): Legislative Recap

Wed, 02 Apr 2025 17:41:31 GMT

As we move further into 2025, we want to share an update on our legislative advocacy efforts this session. KABC remains committed to championing policies that protect and support older adults and individuals in long-term care. Here’s a look at key legislative developments and where things stand:

Success for SB 88: Improved Ombudsman Training in Memory Care

KABC proudly provided testimony in favor of SB 88, a bill requiring the State Long-Term Care Ombudsman and regional ombudsmen to receive training in memory care. Led by the Alzheimer’s Association, this bill ensures that those advocating for residents in long-term care facilities have the specialized knowledge necessary to support individuals with Alzheimer’s disease and other forms of dementia.

We are pleased to report that SB 88 successfully passed both the House and Senate and was signed into law by Governor Kelly in late March. This is a significant step forward in improving the quality of advocacy and care for Kansans affected by memory-related conditions.

Fighting Against Dangerous Fire Safety Rollbacks in SB 276

KABC prepared testimony in opposition to SB 276, a bill that proposed removing the State Fire Marshal from the Adult Care Home Licensure Act and the Providers of Disability Services Act. While we strongly support enhanced training for professionals in person-centered care and dementia response, this bill posed a serious threat to fire safety standards in long-term care facilities.

If passed, SB 276 would have eliminated minimum fire safety standards for 720 adult care homes and provider locations across Kansas—leaving 95% of the state unprotected. Additionally, it would have stripped the State Fire Marshal’s authority to inspect these facilities, recommend corrective actions, or levy fines for noncompliance. Such deregulation would put thousands of vulnerable residents at risk.

The hearing for SB 276 was ultimately canceled, a decision that reinforces the importance of maintaining essential safety protections for long-term care residents. We remain vigilant in opposing any future efforts to weaken these safeguards.

Advocating for a Statewide Senior Resource Directory

One of our key advocacy priorities this session has been securing funding for a statewide senior resource directory—a vital tool to connect older Kansans with essential services and support. We advocated that $190,000 be added to the Kansas Department for Aging and Disability Services (KDADS) budget for the resource guide. This funding was a recommendation from the Senior Care Legislative Task Force.

With strong support from Senator Kloos, the Senate included the funding recommendation in the budget, and it successfully advanced to the budget conference committee. Both the House and Senate have now included the funding in the final budget bill, which is currently awaiting review from Governor Kelly.

We will provide updates as soon as the budget is finalized.

Looking Ahead

KABC will continue monitoring legislative developments and advocating for policies that prioritize safety, care, and quality of life for older Kansans. Your support makes these advocacy efforts possible, and we encourage you to stay engaged.

Thank you for standing with us in the fight for better care. Stay tuned for more updates!

Opinion Piece from Dave Ranney, KABC Board Member

Tue, 01 Apr 2025 15:33:24 GMT

Opinion piece from Dave Ranney, current KABC Board Member and retired newspaper reporter:

In a recent Kansas News Service story on Sen. Roger Marshall’s appearance at a town hall meeting in Oakley, Kansas, (pop. 1,982), a board member with the local nursing home said he’d hoped to hear about issues “…affecting nursing homes right now. Rural hospitals are hurting but all people wanted to do was scream at the senator.”

The board member’s concerns are valid and deeply troubling. Cuts in Medicaid spending will be devastating. Medicaid is the backbone of long-term care in Kansas; 57 percent of the state’s nursing home residents rely on Medicaid for their care. These are frail elders whose estates have been depleted. They have no money.

Medicaid reimbursement rates are, at best, break-even. They’re not ‘profit centers.’ Even a small reduction in rates will push many rural facilities to the brink of closure. Quality of care, too, is sure to suffer.

Medicare, unfortunately, does not cover nursing home care.

Rural families will be left with no choice but to move their loved ones far from home to receive the care they need and deserve. Already, eight of the state’s 105 counites are without a nursing home; at least 40 have only one.

National surveys have found that a fourth of the nursing homes in Kansas are providing sub-standard care, usually due to inadequate staffing. Recruiting and retaining nurses and healthcare staff in small towns is critical.

The board member would do well to consider what’ll happen when DOGE figures out that Medicaid is paying for care that often falls short of federal standard.

Lawmakers on both the state and national levels have a responsibility to ensure stable Medicaid funding to keep existing facilities open while, at the same time, investing in community-based services that offer lower-cost, in-home care options that allow people to remain in their communities.

Sincerely,

Dave Ranney

Dave Ranney is a retired newspaper reporter, he lives in Lawrence, Kansas.

Understanding Guardianship and Conservatorship in Kansas

Mon, 24 Mar 2025 18:31:01 GMT

When an older adult or someone with Alzheimer's, dementia, or any other serious health issue can no longer make safe decisions about their care or finances, guardianship or conservatorship may be needed. These legal arrangements help protect vulnerable individuals from neglect, abuse, or financial exploitation. However, they should only be used when other options are not effective.

What is Guardianship?

A guardian is a person appointed by the court to make legal decisions about an individual’s health, safety, and overall well-being. The person under guardianship is called a ward. Guardians help ensure their ward receives proper medical care, safe housing, and necessary services. Acquiring guardianship takes time. It involves enlisting the help of an attorney and testifying in court for guardianship proceedings. Not only does a guardian make health care and financial decisions, a guardian also makes sure the person's day-to-day needs for safety, food, shelter and care are met. Guardians are responsible to and supervised by the court.

What is Conservatorship?

A conservator is appointed by the court to manage an individual’s finances and property. The person under conservatorship is called a conservatee . Conservators oversee bank accounts, pay bills, and make sure the conservatee’s assets are protected.

What Are the Responsibilities of a Guardian or Conservator?

Guardians make decisions about healthcare, living arrangements, and personal needs.
Conservators manage money, pay expenses, and handle financial matters.
Both must always act in the best interest of the person they support.
The law requires them to respect the wishes and values of the ward or conservatee as much as possible.
Every year, guardians and conservators must submit reports to the court about the care and finances of the person they support.

Does a Guardian or Conservator Pay for Care?

No, guardians and conservators are not required to use their own money to support the ward or conservatee. Medical bills, nursing home costs, and other expenses should be paid from the individual’s own funds or through available benefits.

Can a Guardianship or Conservatorship End?

Yes, the court may end guardianship or conservatorship if:

The person regains the ability to make their own decisions.
The need for guardianship or conservatorship no longer exists.
The ward or conservatee passes away.

How to Become a Guardian or Conservator?

Anyone appointed after January 1, 2009 , must complete a basic training program before officially becoming a guardian or conservator.

For more information, visit the Kansas Guardianship Program website or call 1-800-672-0086 .

Nursing Facilities with Zero Deficiencies

Tue, 25 Feb 2025 21:38:27 GMT

A nursing home’s failure to meet a Federal participation requirement is defined as a deficiency. Examples of deficiencies include a nursing home’s failure to adhere to proper infection control measures and to provide necessary care and services. Each deficiency is given a letter rating of A through L based on the State agency’s determination of the scope and severity of the deficiency. See chart below.

KABC keeps track of inspection results for every licensed long-term care facility in Kansas. We look for patterns or trends of both good quality care and poor care.

The following six nursing facilities in Kansas had no deficiencies cited during their most recent health inspection:

Bethesda Home, Goessel
Haviland Health and Rehab
Ross Hall, Leavenworth
North Point Skilled Nursing Center, Paola
Yates Center Health and Rehab (recently burned down, all residents and staff were safely evacuated)
Villa Maria, Mulvane

In addition, Ross Hall, Haviland Health and Rehab, and Yates Center Health & Rehab have had three consecutive inspections with no deficiencies.

To learn more about these facilities or any others in Kansas, contact KABC. We can provide up-to-date information about inspection results, complaint investigations, changes in administrators or owners and more at no cost. Let us help you in finding the best care possible for your loved ones.

Advocacy in Action (March 2025): KABC Stands Against Medicaid Cuts

Tue, 25 Feb 2025 21:34:11 GMT

KABC is raising the alarm over proposed federal cuts to Medicaid that could strip away as much as $2.5 trillion from the program. This is not just a budgetary adjustment—it is a direct threat to the well-being of thousands of older Kansans who rely on Medicaid for their long-term care needs.

Dan Goodman, Executive Director of KABC, spoke out against these proposed cuts, emphasizing the urgent need for Kansans to take action: “I have no sense that this will deter the Federal Administration from taking action on this program, but rather the hope is to illuminate this issue for those Kansans that are paying attention and bring about a more calibrated approach. We must get Kansans to think about what long-term care looks like for Older Kansans with lesser Medicaid funding. I’m here to urge you to protect Older Kansans, protect Medicaid.”

Goodman was invited to speak at the Kansas Statehouse in Topeka on Monday, February 24, 2025, to address the recent movement by Congressional leaders to cut federal Medicaid funding. The informal gaggle took place in the east wing of the ground level of the Kansas Statehouse and gained statewide media attention. Other speakers included April Holman, Executive Director of the Alliance for a Healthy Kansas; Rocky Nichols, Executive Director of the Disability Rights Center of Kansas; and Adrienne Olejnik, Vice President of Kansas Action for Children.

Medicaid: A Lifeline for Older Kansans

Most Kansans over 65 rely on Medicare for their healthcare needs, but it is Medicaid that ensures access to long-term care services, whether at home or in nursing facilities. For thousands of seniors in Kansas, Medicaid is the only option that allows them to age with dignity in their own homes, receiving essential support services.

However, the impact of these proposed federal cuts would be catastrophic. Kansas already suffers from a critical shortage of direct care workers, and nearly 85,000 Older Kansans live in areas with limited access to care. Slashing Medicaid funding will only deepen this crisis. Rural communities, where healthcare access is already strained, will be hit the hardest. Short-term savings from these cuts will be overshadowed by the long-term damage—weakening the home and long-term care infrastructure, driving more providers out of the workforce, and placing tens of thousands of Older Kansans at risk.

Who Will Care for Older Kansans?

More than half of Kansas nursing home residents depend on Medicaid to afford care, which costs an average of $7,700 per month for a semi-private room. These older adults have already depleted their assets before qualifying for Medicaid, leaving them with no other options. Many have no family to step in, and even when family is available, they may not have the ability to provide the level of care required.

Without Medicaid, who will care for them? And how will Kansas taxpayers fill the financial void left by the loss of federal funding? This is not just a question of policy—it is a question of morality and responsibility.

Take Action Now

We cannot afford to wait and see what happens. Kansans must act now. Contact your federal representatives ( Find Your Members in the U.S. Congress | Congress.gov | Library of Congress ) and tell them: Medicaid is not just another federal program to be gutted—it is a lifeline for older Kansans. Do not allow reckless budget cuts to dismantle a system that so many depend on.

Stand up. Speak out. Demand that Medicaid funding is protected before it is too late. The future of long-term care in Kansas depends on it. Protect older Kansans. Protect Medicaid.

Advocacy with KABC 101: Your Guide to Making an Impact

Mon, 10 Feb 2025 16:25:40 GMT

The Kansas legislative session is in full swing, making it the perfect time to engage with your lawmakers and advocate for policies that improve long-term care in our state. Whether you're a seasoned advocate or just getting started, knowing how to effectively communicate with legislators is key to making a difference.

We believe that every voice matters, and lawmakers want to hear from the people they represent. To find your legislator, visit the Kansas legislative website. When you visit www.kslegislature.org , there is an option on the left side of the website to “Find Your Legislator”. You may search by name, chamber, party, or select “Seach by Your Address”. This will lead you to Plural , a platform to find bill information and your local legislators by typing in your home address.

Tips for Effective Advocacy

Be Friendly – Legislators are people too! Approach them with sincerity and honesty. While time may be limited, be sure to focus on the issue you're there to champion.

Be Prepared – This is your chance to educate. Start with a clear, concise explanation of the issue, and provide only factual information.

Be Respectful – Not everyone will agree with your position. Some lawmakers may have concerns about costs, feasibility, or other factors. Treat them with respect, as they may be allies on future issues.

Be Direct – Answer questions openly and honestly. Share the full picture, including both the challenges and the solutions.

Ask for a Specific Action – Make it clear what you want your legislator to do. Common advocacy actions include:

Sponsoring a bill
Urging committee leadership to take action on a bill
Speaking for or against a bill during debate
Holding a public event to raise awareness
Writing a letter to state agencies about oversight and implementation of a law

Establish a Relationship – Don't just reach out when you need something. Contact your legislators regularly, thank them when they support your issues, and stay engaged. Building a relationship increases the likelihood they will listen when you advocate for change.

Say Thanks – Gratitude goes a long way! Always follow up with a thank-you note or email after a meeting, even if the legislator disagrees with your position.

Advocacy is about persistence, education, and relationship-building. By using these strategies, you can help ensure that long-term care remains a priority for Kansas lawmakers.

Want to learn more? Check out KABC’s full Advocacy 101 guide here .

Advocacy in Action (February 2025): KABC Testifies Before House Social Services Budget Committee

Wed, 29 Jan 2025 21:44:45 GMT

On Thursday, January 30th, Dan Goodman, Executive Director, presented testimony before the House Social Services Budget Committee. His remarks focused on essential recommendations for the Kansas Department of Aging & Disability Services (KDADS) budget, underscoring the urgent need for a Statewide Resource Guide for Older Kansans.

Dan’s testimony emphasized Kansas’s rapidly aging population, with projections showing that more than 20% of Kansans will be 65 or older by 2030. With state resources already stretched thin, KABC urged the committee to prioritize investments in solutions that diversify and enhance access to long-term care services across Kansas.

Highlighting the Statewide Resource Guide

KABC’s flagship recommendation was a comprehensive Statewide Resource Guide for Older Kansans, modeled after the highly successful Douglas County Senior Resource Directory. The proposal seeks $190,000 to develop and distribute a directory that would serve as an essential tool for older Kansans and their families. The funding would cover:

Initial Setup & Information Coordination: $85,000
One-Time Master Printing for Statewide Distribution (35,000 copies): $105,000

The guide would provide accurate, accessible, and up-to-date information on long-term care services and resources, with an online version that could be printed on demand. This initiative aligns with the Senior Care Legislative Task Force’s final recommendations and would empower Kansans to make informed decisions about care options.

Dan emphasized the proven success of the Douglas County Senior Resource Directory, which KABC developed with grant funding through the Douglas County Community Foundation. Since its launch, the directory has been accessed online by over 700 individuals and distributed to hundreds of older adults, caregivers, and local businesses. Expanding this model statewide would ensure that every Kansan—regardless of where they live—has access to vital information when they need it most.

Other Budget Priorities KABC Supports

KABC also backed several of KDADS Governor’s budget recommendations, including funding increases for:

HCBS Frail Elderly Waiver Growth
HCBS Brain Injury Waiver Growth
Nutrition Services Incentive Program

Stay tuned for updates as we continue to advocate for these critical investments during the legislative session!

Advocacy in Action (January 2025): A Preview Into the Legislative Session

Wed, 08 Jan 2025 19:56:11 GMT

If predictions are correct, the upcoming Kansas Legislature can likely be summed up by one word: “change.” Leadership changes, a large freshman class of legislators, new committee chairs and a compressed calendar all combine to make 2025 a year full of changes. Added to the mix is a stronger Republican supermajority with an additional 2 seats in the Senate and 3 in the House of Representatives.

A quick breakdown by the numbers:

The 2025 Senate is comprised of 31 Republicans and 9 Democrats. There are 14 new senators; 13 of whom are Republicans. Almost half of the new senators, 6, previously served in the House. Of the 40 Senators, 27 are men (a gain of 4) and 13 are women.

Of the 125 members of the House, 88 Republicans make up the majority with 37 Democrats in the minority caucus. Of the 25 House freshman, 21 are Republicans and 4 are Democrats. Women will make up almost a third of the House, 41, with a gain of 6 House seats in the last election. There are 84 men in the House. One new House member previously served in the Senate.

The legislature lost decades of institutional knowledge with the retirement of 19 House members and 14 senators. Many of the retiring legislators were experienced lawmakers who served in leadership positions and committee chairs.

Significant procedural changes will impact legislative dynamics. Legislative leaders have adopted a compressed timeline for the 2025 session with plans to adjourn sine die no later than April 12 (the 90th day of the legislative session).

Traditionally, the 90th day occurs at the end of April/early May with the ceremonial sine die held in late May. You can view the session calendar here.

A new process will change the way the State budget is developed. Instead of using the governor’s budget as the base to begin negotiations, a special legislative budget committee will introduce what is being termed the “legislature’s budget” on Jan. 13, the first day of the session. The special committee met five days during November and December to craft a budget based on the 2024 approved budget, with very few enhancements requested by State agencies. How the budget process and tight time schedule proceeds is still largely to be determined.

There are major changes in legislative leadership with the Senate electing Sen. Tim Shallenberger, (R-Baxter Springs) as its new vice president and Sen. Chase Blasi (R-Wichita) as majority leader. Sen. Ty Master (R-Andover) remains Senate president Dinah Sykes (D-Lenexa) will continue as Senate minority leader.

In the House, Rep. Brandon Woodard (D-Wichita), takes the reigns as the new minority leader.

Committees, too, will look different led by mostly new chairs and/or vice chairs along with new members. In the Senate, a new Committee on Government Efficiency, modeled off the proposed federal Department of Government Efficiency, will explore ways to restructure and reform state government to reduce spending and increase efficiency.

All of these changes and multiple moving parts, including the goal to keep a tight rein on the budget, add up to uncertainty related to health and social services issues, including those impacting older adults. With all these variables, this will, in sports terms, be a “building year.”

KABC will use this opportunity to build relationships with new and returning policy makers to explore legislation that supports person-centered policies and programs while protecting the rights of aging persons and those with disabilities. We will keep you regularly updated during the 2025 session and opportunities for advocacy but we encourage you to get acquainted with your elected officials. They want and need to hear from you, their constituents. Your experiences and observations about long term care in Kansas helps build their knowledge around these issues with first-hand information about the needs of the people they serve.

What Happens When You Report to Adult Protective Services?

Mon, 30 Dec 2024 23:00:51 GMT

When you suspect abuse, neglect, or exploitation of older adults, report as soon as possible!

For older adults living at home in the community or in facilities licensed by the Kansas Department of Aging and Disability Services when the perpetrator is not a resident of or staff of the facility, report to the following:

Adult Protective Services (APS): 1-800-922-5330
If an emergency, call your local law enforcement agency or 911

The intent of APS is to protect the most vulnerable adults from harm while safeguarding their civil liberties. For more information, visit www.dcf.ks.gov/services/PPS/Pages/APS/AdultProtectiveServices.aspx

When someone suspects abuse, neglect, exploitation, or fiduciary abuse of a vulnerable adult, reporting to APS is a critical step in ensuring the individual’s safety and well-being. Here’s what you need to know about the reporting process and what happens after a report is made.

Reporter Immunity

Individuals who report suspected abuse or participate in follow-up activities, including testifying in administrative or judicial proceedings, are protected under the law. This means they are immune from any civil or criminal liability, provided their report is not malicious. Additionally, employers cannot penalize employees for making a report or cooperating with an investigation.

Confidentiality of the Reporter

The identity of the person who makes a report is kept strictly confidential. APS will not disclose the name of the reporter or anyone mentioned in the report without written permission from the reporter or a court order.

What Does APS Do When a Report is Received?

Once a report is submitted, APS takes the following actions to investigate and address the situation:

1. Initial Visit:
APS initiates a personal visit with the adult in question within 24 hours to five working days, depending on the risk of imminent danger to the individual.

2. Interview Process:

The alleged perpetrator is interviewed unless this action could increase the risk to the adult.
APS may also interview relevant individuals, such as service providers, relatives, or neighbors, to gather additional information.

3. Determination of Findings:

APS evaluates the allegations and determines whether the report is substantiated or unsubstantiated regarding abuse, neglect, exploitation, or fiduciary abuse.

4. Prevention Plan:

APS discusses with the adult, their guardian, conservator, or caretaker the necessary actions to prevent further harm.
A service plan is developed with the adult to address unmet needs and ensure their safety.

5. Assistance and Services:
APS helps the adult access services essential for maintaining their physical and mental health, such as:

Legal services
Medical care
Safe and appropriate living arrangements
Assistance with personal hygiene, food, clothing, or shelter
Protection from maltreatment and transportation

Services provided are tailored to meet the adult’s needs in the least restrictive way possible.

6. Advocacy:

APS advocates for the protection of the adult’s rights and works to ensure they receive the necessary care and support.

7. Involuntary Intervention:

If the adult is incapable of protecting themselves due to a major mental or physical disability and there are no other less restrictive options, APS may initiate legal steps such as guardianship or conservatorship.

Reporting to APS is a powerful way to help protect vulnerable adults from harm. The process ensures that reports are handled sensitively, with protections in place for the reporter and a thorough investigation to address the individual’s needs. By taking action, reporters play a crucial role in safeguarding the well-being of those who cannot protect themselves.

Bringing Joy to Older Adults During the Holidays

Thu, 12 Dec 2024 15:56:49 GMT

The holiday season is a time of warmth, connection, and celebration. Yet for many older adults, especially those living in nursing homes, it can be a challenging period marked by feelings of isolation or nostalgia for past traditions. This year, let’s consider meaningful ways to bring joy to older adults and ensure they feel the love and care they deserve.

1. Reconnect Through Visits and Calls

Spending time with an older adult can make a world of difference. Whether it’s a quick phone call, a video chat, or an in-person visit, these moments remind them that they are loved and valued. For nursing home residents, a cheerful visit can brighten their day. Consider bringing a small gift, like a festive decoration or a framed photo, to personalize their space and evoke positive memories.

2. Create Shared Experiences

Holidays are built around shared traditions. Invite older adults to participate in activities like decorating cookies, crafting ornaments, or watching classic holiday movies. For nursing home residents, arrange group activities such as caroling or storytelling sessions where they can share their cherished memories.

3. Send Cards and Letters

Receiving a heartfelt card can lift spirits and foster connection. Encourage family, friends, and community groups to write holiday greetings to older adults. Nursing homes often welcome these initiatives, and some may have "adopt-a-resident" programs where you can brighten the holidays for someone without family nearby.

4. Offer Practical Help

Many older adults struggle with tasks that become harder as they age. Offer to help with holiday shopping, decorating their home, or preparing meals. If they live in a nursing home, consider donating time or resources to assist with facility-wide celebrations.

5. Celebrate Their Unique Traditions

Every person has unique holiday traditions, and honoring these can be deeply meaningful. Take the time to learn about what the holidays mean to them and incorporate those traditions into your celebrations. Perhaps they’d love to cook a special recipe, attend a religious service, or listen to specific songs that evoke cherished memories.

6. Share Comfort and Warmth

Sometimes, the simplest gestures mean the most. Bring cozy blankets, warm socks, or a favorite holiday treat. These small tokens can provide comfort and remind them of the joy the season brings.

Making the Holidays Bright

Helping older adults feel included and loved during the holidays is a gift that benefits everyone involved. Whether through time, thoughtful gestures, or community efforts, your kindness can create cherished memories and foster a sense of belonging. This holiday season, let’s ensure no one feels forgotten. Together, we can make it a time of joy for all.

CMS Issues Major Updates to Nursing Home Care Guidelines

Fri, 22 Nov 2024 16:02:27 GMT

If you have a loved one in a nursing home, there’s important news about changes that could impact their care. The Centers for Medicare & Medicaid Services (CMS) has issued significant revised guidance for nursing home surveyors, with updates spanning everything from admission and discharge policies to medication use and infection prevention practices. These changes, effective February 24, 2025, aim to enhance the health, safety, and quality of life for residents in long-term care facilities.

What’s Changing?

CMS’s new 900-page revised long-term care surveyor guidance document includes updates to critical care areas such as:

Medication Use and Chemical Restraints: A key focus is reducing the unnecessary use of psychotropic medications. Facilities must prioritize non-drug treatments unless clinically inappropriate and cannot use psychotropics as “chemical restraints” for staff convenience. Residents and families also gain stronger rights to be informed and make decisions about medication use.
Infection Control: Enhanced measures, including updates for preventing the spread of multidrug-resistant infections and COVID-19, will improve safety for residents.
Admission and Discharge Practices: New guidance on prohibiting the requirement of families or third parties to guarantee payment in admission agreements and clarify when discharges or transfers are considered inappropriate.
Personalized Pain Management: Updated pain management guidance aligns with the latest CDC standards, focusing on individualized treatment plans tailored to residents’ needs.

Medication Rights: A Focus on Psychotropics

CMS is strengthening protections against the misuse of psychotropic medications, such as antipsychotics. These medications should only be used when necessary and with clear medical justification.

“This change will help to streamline the survey process, increase consistency, and strengthen our message that facilities must prevent the unnecessary use of psychotropic medications,” CMS said in a memo signed by David Wright, director of quality, safety and oversight. Residents also retain the right to refuse or accept treatment after being fully informed of their options.

Surveyors, who inspect nursing homes for compliance, are now required to:

Investigate cases where antipsychotics are prescribed without sufficient medical documentation.
Interview medical directors over their role in the use and abuse of unnecessary medication, especially for residents diagnosed with conditions like schizophrenia without proper evidence.

Strengthening Oversight and Care Standards

Beyond medication use, CMS is addressing broader care issues:

Enhanced Accuracy: New instructions help ensure health assessments accurately reflect residents’ needs.
Health Equity: Facilities must now consider factors like race, socioeconomic status, and language when addressing health disparities and developing quality improvement plans.
Physical Environment: Newly certified facilities gain more flexibility in meeting certain room and bathroom requirements.

What Families Should Know

These updates mean more transparency, better oversight, and stronger protections for residents:

At the request of nursing facility residents, families should be involved in care decisions and ask about how these changes will affect their loved ones.
Nursing homes must provide safer, higher-quality care without the use of unnecessary antipsychotic medication, with greater accountability for medical directors and staff.
Surveyors will have clearer tools to identify noncompliance, ensuring facilities meet residents’ needs.

Looking Ahead

The updated guidelines take effect in February 2025, giving nursing homes and their staff time to adjust. Training on these changes is already underway.

KABC Hosts First Caring for Older Kansans Panel Discussion

Fri, 15 Nov 2024 19:10:30 GMT

On November 12th, KABC hosted our first Caring for Older Kansans Panel Discussion at the Baker Wetlands Discovery Center, bringing together an audience of around 40 attendees to explore the pressing issues facing long-term care in Kansas. The event was moderated by award-winning journalist Jim McLean, political correspondent for the Kansas News Service and Senior Contributor with Kansas Public Radio, who expertly guided the conversation.

Panelists

The panel featured three distinguished experts in the long-term care field:

Janis DeBoer , former Deputy Secretary of Programs at KDADS and a 30-year veteran in long-term care, shared her knowledge on Medicaid services, nursing facility challenges, and the importance of community-based services.
Camille Russell , former Kansas Long-Term Care Ombudsman, highlighted the importance of person-centered practices and shared her experiences advocating for nursing facility residents.
Rep. Susan Concannon (R-Beloit) from District 107 offered a legislative perspective, emphasizing the need for reform in the long-term care system while navigating a challenging political environment.

Key Issues Discussed

The conversation touched on several critical topics:

1. Challenges in Nursing Facilities

Janis DeBoer noted that nursing facilities have long been difficult to manage, with a lack of effective quality care metrics and a system built more for providers than consumers. Rep. Concannon echoed this, citing the disconnect between government funding and accountability.

2. Policy and Data Gaps

The panel emphasized how the transition from the Kansas Department on Aging (KDOA) to the Kansas Department for Aging and Disability Services (KDADS) deprioritized senior issues. DeBoer stressed the need for statewide data to support advocacy efforts, while Camille Russell called for policymakers to hear directly from nursing home residents and an increase in grassroots advocacy efforts.

3. Workforce Challenges

Workforce shortages remain a significant barrier to quality care. DeBoer called for increased pay throughout the industry and better working conditions for CNAs. The panel agreed that a cultural shift is needed to make long-term care jobs more attractive and sustainable.

4. Transparency and Consumer Awareness

The panel discussed the need for greater transparency in the system, including access to quality care metrics and ownership information. Rep. Concannon pointed out that while survey data is accessible, most consumers are unaware of it.

5. Shifting Toward Community-Based Services

DeBoer underscored the cost-saving and quality-of-life benefits of reducing nursing facility stays by investing in community-based services. Research shows that these services increase the likelihood of individuals returning home and living independently.

Key Takeaways

The event highlighted three primary areas for improvement:

Greater Transparency: Make information on facility performance and ownership readily available to consumers and the public.
Improved Communication: Foster collaboration among stakeholders, including policymakers, service providers, and families, to address systemic gaps.
Diversifying Service Options: Reduce Kansas's reliance on institutional care by expanding and strengthening community-based services for older adults.

Special Highlights

Sherman Smith of the Kansas Reflector attended the event to document the discussion, capturing key moments and engaging with attendees and panelists. The participation of Senator Francisco (D- Lawrence) and Representative McDonald (D-Olathe) further underscored the importance of legislative involvement in shaping the future of long-term care in Kansas.

This event was an impactful step toward fostering dialogue, raising awareness, and advocating for meaningful change in long-term care policy and practice in Kansas. We look forward to continuing the conversation and driving progress for older Kansans.

Advocacy in Action (October 2024): Your Right to Vote

Sat, 02 Nov 2024 15:53:49 GMT

As we approach the 2024 general election, it’s important to ensure that you’re registered to vote and prepared to participate. In Kansas, you must be a U.S. citizen, a resident of the state, and at least 18 years old by Election Day to register. Additionally, if you’ve moved or changed your name, you’ll need to update your voter registration. You can check your voter registration online , view a sample ballot, and check your polling location.

Kansas is a “no-excuse” absentee voting state, meaning any registered voter can request a mail-in ballot without providing a reason. The deadline to register to vote or update your registration is Tuesday, October 15th. You can register in person at your local election office, at the DMV, or online if you have a valid Kansas driver’s license or ID. If you don’t have one, you can still register using the paper Kansas Voter Registration Application by mail.

For voters who prefer to vote by mail, the deadline to submit your advance voting application is October 29th, and ballots will begin being mailed on October 16th. Make sure your ballot is postmarked by November 5th (Election Day) and received by the county election office within three business days after the election.

If you vote in person, Kansas requires photographic identification. Voters 65 or older can use an expired photo ID.

For residents in long-term care facilities, absentee ballots may be an easier option than voting in-person.

When residents receive their ballots in the mail, long-term care staff must understand what they can and cannot help with when it comes to assisting residents in filling out their ballots. For example, an assistance provider should ask the voter what choice they want to make. The assistance provider must never make assumptions regarding how a person wants to vote. If the resident has a Power of Attorney (POA), that person should be contacted about helping the resident fill out their ballot. The resident has the right to decide whether they want assistance and can choose who they want to help them fill out their ballot.

The Centers for Medicare & Medicaid Services (CMS) released a recent memo affirming the regulatory expectation that ensures nursing home residents have the unimpeded ability to exercise their right to vote as a citizen of the United States. The memo hits the high points from the Nursing Home Reform Act that requires facilities honor the rights, including the right to vote, of residents.

Federal and state laws ensure that voting is accessible to everyone. If you feel your voting rights have been violated, contact the Office of the Secretary of State at 800-262-VOTE (8683).

Your Rights as a Nursing Facility Resident

Tue, 08 Oct 2024 13:00:00 GMT

When you or a loved one enters a nursing facility, it's important to know that residents have specific rights and protections guaranteed by both Federal and state law. These rights are designed to ensure residents receive the care, respect, and services they deserve while maintaining their dignity and autonomy. As advocates for quality long-term care in Kansas, we want to make sure you're informed about these essential protections.

What Are Your Rights as a Nursing Home Resident?

Under Federal law, every nursing home resident has the right to:

Be Treated with Respect: Residents have the right to be treated with dignity and to make decisions about their daily routine, such as when they wake up, go to bed, and eat their meals.
Participate in Activities: Nursing homes must offer activities that meet the needs and interests of each resident, allowing them to remain engaged and fulfilled.
Be Free from Abuse and Neglect: No resident should ever experience verbal, physical, sexual, or emotional abuse. If abuse or neglect is suspected, the nursing home must report it, and residents have the right to alert authorities themselves.
Make Medical Decisions: Residents have the right to be fully informed about their health conditions, treatments, and medications in a way they understand. They can also choose their doctor and participate in developing their care plan.
Manage Their Money: Residents can manage their own finances or choose someone they trust to handle their money. The nursing home must protect residents' funds from loss or theft.
Maintain Privacy: Every resident has the right to private communication, whether through visits, phone calls, or mail. The facility must also protect residents' personal belongings and provide living arrangements that respect their preferences.

These are just a few of the many rights outlined by the Centers for Medicare and Medicaid Services (CMS). The full list of protections ensures that every nursing home resident is safeguarded, from protection against unfair transfers to the ability to lodge complaints without fear of retaliation.

What To Do if Rights Are Violated

If you suspect that your rights or the rights of a loved one in a nursing facility are being violated, it’s crucial to take action. Bring your concerns to the attention of the nursing home staff such as administrators and nurses, contact your long-term care ombudsman , and document the incident (take detailed notes of what you observed). If you suspect immediate harm, contact law enforcement! We at Kansas Advocates for Better Care are here to help. Whether it’s a matter of neglect, abuse, or other infringements of your rights, you don’t have to face it alone.

Contact us today if you or a loved one need assistance. We are committed to advocating for the care, dignity, and well-being of all nursing home residents at no cost to you. Let us stand by your side and help you navigate the process to ensure that the rights of nursing facility residents are upheld.

Advocacy in Action (September 2024): KABC Testifies at the Bob Bethell KanCare Oversight Committee

Tue, 01 Oct 2024 23:58:16 GMT

On Monday, August 26th, Libby Hastings, Communication and Public Relations Coordinator, had the honor of presenting testimony on behalf of KABC to the Robert G. Bethell Joint Committee on Home & Community Based Services & KanCare Oversight Committee. Our goal was clear: to advocate for the reinstatement of the "Explore Your Options" (EYO) resource guide, a vital tool for older Kansans and their caregivers.

In recent months, our work with the Douglas County Senior Resource Directory has underscored the critical need for a comprehensive resource guide. Since launching the directory, we've seen firsthand how essential it is for older adults to have access to reliable, up-to-date information about the services and resources available to them. The response to our directory has been overwhelmingly positive, with individuals and families expressing their appreciation for a resource that helps them navigate the complexities of long-term care.

The importance of the EYO guide was highlighted in the Final Report of the Kansas Senior Care Task Force to the 2023 Kansas Legislature . A key recommendation from the Task Force was for the Kansas Department for Aging and Disability Services (KDADS) to reinstitute the EYO guide, which would provide a centralized, accessible source of information for older adults across the state. The guide would be published online and in print, ensuring that those without internet access can still benefit from this essential resource.

The need for such a guide is urgent. As one of the working groups from the Kansas Senior Care Task Force noted, it is critical for older adults and caregivers to know where to access service information and resources when the need for long-term supports and services arises. The lack of access to reliable, accurate information can lead to frustration, confusion, and potentially harmful outcomes for seniors and their families.

While some areas of the state, like Johnson County and Central Plains, have found ways to create their own versions of the EYO guide, most counties do not have the resources or capacity to do so without state assistance. That’s why we’re asking this committee to encourage and support KDADS in bringing back the EYO guide. By doing so, we can ensure that all older Kansans, regardless of where they live, have the information they need to make informed decisions about their care.

Together Against Elder Abuse: KABC's 2024 Caregiver Training and Membership Meeting

Fri, 20 Sep 2024 14:06:52 GMT

Annual Caregiver Training Recap 2024

At KABC, we are dedicated to supporting caregivers and empowering them with the knowledge and tools needed to care for older adults. On Thursday, September 12, 2024, we hosted our Annual Caregiver Training, focused on the critical issues of elder abuse, neglect, and financial exploitation. This virtual event provided vital insights into how we can protect vulnerable older adults and prevent harm within caregiving settings.

Access the Presentations and Resources

If you missed the live event, we’ve got you covered! You can access both of the presentations shared by our speakers below:

Vanessa Riebli: Elder Justice in Kansas
Rick Fleming: Financial Literacy and Empowerment for Older Adults

Watch the Full Recording

You can also watch the full training session on our YouTube channel. Click the link below to view the recording:

Together Against Elder Abuse: KABC's 2024 Caregiver Training and Membership Meetings

Why This Matters

Elder abuse and neglect are serious issues that often go unnoticed. Financial exploitation is an increasing threat to older adults, and caregivers play a crucial role in identifying, reporting, and preventing these forms of harm. Through education and awareness, we can all work together to protect the rights and dignity of older adults.

Stay Connected with KABC

For more resources, upcoming events, and information about how KABC is advocating for better care for Kansas seniors, be sure to visit our website and follow us on social media.

Thank you to everyone who joined us for this impactful event, and for all that you do to support the well-being of older adults in our community.

Advocacy in Action (August 2024): KABC Discusses "Problem Facilities" and the Urgent Need for Reform

Mon, 09 Sep 2024 17:23:48 GMT

In a recent podcast episode and article with the Kansas Reflector, Dan Goodman, KABC Executive Director, and Libby Hastings, Communication and Public Relations Coordinator, shed light on the critical issues facing nursing facilities in Kansas. Interviewed by Tim Carpenter, they discussed the alarming findings from the Long-Term Care Community Coalition's latest data regarding "problem facilities" and the federal staffing mandate from U.S. Centers for Medicare & Medicaid Services.

This conversation was based on the insights shared in our July e-newsletter Advocacy in Action article and has garnered significant attention. Media outlets and local newspapers in Hays, Dodge City, Ottawa, and Wichita have picked up the Kansas Reflector story, amplifying the urgent need for reform in long-term care.

Goodman also spoke with Abby Wray with KAKE News in Wichita to continue the discussion on "problem facilities" and poor care in Kansas nursing facilities.

At KABC, we remain steadfast in our mission to ensure quality long-term care for all Kansas residents. We invite you to read our article with Tim Carpenter and listen to the podcast episode. Your support and engagement are crucial as we continue to fight for improved care standards.

We extend our heartfelt thanks to our supporters and the media for helping us share the harsh realities of nursing homes. Together, we can drive the change needed to ensure safe, dignified, and quality care for all residents in Kansas.

Kansas Struggles with Low-Care Nursing Home Residents, Ranking Among the Worst in the Nation

Tue, 03 Sep 2024 19:02:52 GMT

The United Health Foundation recently released the America’s Health Rankings® 2024 Senior Report , offering a detailed look into the health and well-being of older adults across the United States. The report examines 52 measures of health from 24 distinct data sources, providing a comprehensive overview of how each state supports its aging population. Unfortunately, Kansas continues to lag in a crucial area—low-care nursing home residents.

Kansas ranks #47 in the nation (same as last year, 2023) for the percentage of low-care residents in nursing homes, meaning that a higher proportion of older adults who require minimal assistance are still being placed in institutional settings. With 17% of Kansas nursing home residents classified as low-care, the state is among the worst in the nation, surpassed only by Missouri and Oklahoma, which have even higher percentages.

Alaska wasn’t rated in this category, which means Kansas might be the 4th worst, or possibly the 3rd worst, depending on how you interpret the data. In contrast, Hawaii leads the nation with only 2.6% of its nursing home residents classified as low-care, followed by Maine at 2.9%. Montana narrowly edged out Kansas, ranking 46th with 16.3%.

This troubling statistic highlights the need for more readily available long-term care services and supports within Kansas communities, allowing residents aged 65 and older the option to delay or avoid institutional care. The availability of these services is vital for maintaining the independence and quality of life for older adults.

In the broader context of national healthcare rankings, Kansas fares somewhat better, coming in at 25th overall. However, neighboring states show a wide range of rankings, with Colorado ranking 2nd, Nebraska at 14th, Missouri at 41st, and Oklahoma close to the bottom at 46th.

The report also identifies other critical areas where Kansas must improve:

Drug Deaths Among Older Adults: The number of drug-related deaths per 100,000 adults aged 65 and older has risen dramatically in Kansas, increasing by 61% from 5.7 (2017-2019) to 9.2 (2020-2022).
Healthcare Disparities: There is a significant disparity in avoiding care due to cost among older adults in Kansas. Those with less than a high school education are 15.2 times more likely to avoid care compared to those with a college degree.

These findings underscore the importance of addressing the systemic issues in Kansas’ long-term care and healthcare systems to ensure that all older adults have access to the care they need, regardless of their level of required assistance or socioeconomic status. As the state continues to rank poorly in areas like low-care nursing home residents, it’s clear that more needs to be done to support our aging population.

KanCare Oversight Testimony (August 2024)

Mon, 26 Aug 2024 20:56:10 GMT

Libby Hastings, Communication and Public Relations Coordinator, presented testimony on behalf of KABC to the Robert G. Bethell Joint Committee on Home & Community Based Services & KanCare Oversight Committee on August 26th, 2024. Our main ask the committee's support of the Senior Care Task Force's recommendation to reinstate the "Explore Your Options" resource guide based on the success of the Douglas County Senior Resource Directory.

Read the full testimony here.

What is a Home Plus Facility?

lhastings@kabc.org (Libby Hastings) — Wed, 14 Aug 2024 13:00:00 GMT

If you’re exploring care options for a loved one in Kansas, you might have come across the term “Home Plus.” But what exactly does it mean? Let's dive into some details of these unique facilities and what they offer.

A Home-Like Setting with a Personal Touch

A Home Plus facility is a residential option for individuals who need extra help with daily activities. Defined by the Kansas Department for Aging and Disability Services, these facilities cater to no more than 12 residents. This small size allows for a more intimate, home-like environment compared to larger, more institutional settings.

Who Benefits from Home Plus?

Home Plus is designed for individuals who, due to functional impairments, require personal care and may also need supervised nursing care. This could include assistance with activities such as bathing, dressing, and medication management. The goal is to provide support while maintaining a sense of independence and normalcy for the residents. Essentially, they are like assisted living facilities but smaller, with private suites and some communal spaces.

One important distinction to note is that Home Plus facilities are licensed only by the state of Kansas. This means they adhere to state regulations and standards. Medicare will cover the same items in a Homes Plus that they would cover in your own home: supplies, equipment, and similar items. The difference with Home Plus facilities is that nurses receive orders directly from the doctor and then order the necessary supplies. However, not all Home Plus facilities have contracted doctors. In contrast, if you’re at home, you would need to visit a doctor to obtain equipment orders and then handle the Medicare process yourself, possibly with some assistance from a pharmacy or the doctor’s office.

Medicaid will cover Home Plus through HCBS (Home and Community Based Services) which is a waiver program. In this case, it is called the FE (Frail Elderly) Waiver. However, the Home Plus must be willing to accept and bill Medicaid. Most will not because of the reporting requirements and low reimbursement. Some facilities accept Medicaid but only after two years of private pay or long-term care insurance reimbursement.

Choosing the Right Home Plus Facility

Selecting the right Home Plus facility for your loved one is a crucial decision. Here are some tips to help you make an informed choice:

Check Inspection Reports: Always review the facility’s inspection reports. These can provide valuable insights into the quality of care and any past issues.
Contact KABC: You can always reach out to us at KABC to get a free consumer information report on any licensed adult care home in Kansas, which includes Home Plus facilities.
Visit Unannounced: It’s a good idea to visit the facilities unannounced if possible. This allows you to see the day-to-day operations and get a more genuine feel for the environment.
Ask Questions: During your visits, ask plenty of questions. Here are a few to get you started:

What happens in an emergency or a fall?
How are food preferences honored?
What are the staffing numbers?
How often are nurses on site?
Does your facility offer transportation?

Choosing a Home Plus facility is about finding the right balance of comfort, care, and community for you or your loved one. With thorough research and the right questions, you can make a choice that ensures receiving the best possible care in a warm and supportive environment.

Why Choose Home Plus?

The smaller, more personal setting of a Home Plus facility can be a significant advantage for many families. It often feels more like living in a family home than a traditional care facility. With fewer residents, staff can provide more individualized attention, fostering a closer-knit community and a more personalized care experience.

What Are My Long-Term Care Housing Options?

Wed, 17 Jul 2024 19:14:32 GMT

Navigating long-term care housing options can be a bit overwhelming, but understanding your choices can make it much easier to find the right fit for you or your loved one. Here’s a breakdown of some of the most common options available:

Independent Living

Independent living is perfect for those who want to maintain their independence but still enjoy a community setting with various amenities and services. These communities offer a range of housing options like apartments, duplexes, and condominiums. Payment options include private pay and subsidized arrangements through programs like HUD.

Each independent living community offers different services and activities, so it's essential to explore and find one that matches your lifestyle. Be prepared for an application process and possible waitlisting. Note that independent living communities are not regulated or licensed by the state, so do your due diligence when researching.

Homes Plus

Homes Plus are smaller residences or facilities that cater to no more than 12 individuals. This option is ideal for those who need personal care and supervised nursing care to help with daily living activities. While these facilities are not federally regulated, they are licensed by the Kansas Department for Aging and Disability Services.

Assisted Living/Residential Health Care Facilities

Assisted living and residential health care facilities (RHCFs) offer a residential care setting for older adults who want their own living space but may need help with daily activities such as dressing, bathing, eating, and toileting. The main difference between the two is that RHCFs do not offer kitchenettes in individual rooms. Both types of facilities are licensed by the Kansas Department for Aging and Disability Services but are not federally regulated.

Nursing Facilities

For individuals who need 24-hour care and can no longer live independently, nursing facilities provide comprehensive care. These facilities are suitable for those requiring extended post-operative care, complex medical monitoring, and rehabilitative care. Nursing facilities are licensed and regulated by state governments, with additional federal regulations for those licensed by Medicaid/Medicare.

Choosing the right long-term care housing option depends on individual needs and preferences. It’s important to consider the level of care required, desired amenities, and the regulatory standards of the facility. Exploring these options can ensure a comfortable and supportive living environment for you or your loved one. KABC also offers free consumer information reports for all licensed adult care facilities. To learn more, visit www.kabc.org/consumer-information-reports

KABC Speaks Out on Problematic Nursing Facilities in Kansas

Wed, 10 Jul 2024 15:17:53 GMT

In a recent podcast episode and article with the Kansas Reflector, Dan Goodman, Executive Director, and Libby Hastings, Communication and Public Relations Coordinator, shed light on the critical issues facing nursing facilities in Kansas. Interviewed by Tim Carpenter, they discussed the alarming findings from the Long Term Care Community Coalition's latest data regarding "problem facilities" and the federal staffing mandate from U.S. Centers for Medicare & Medicaid Services.

Advocacy in Action (July 2024): Problem Facilities

Fri, 05 Jul 2024 15:47:59 GMT

The Long-Term Care Community Coalition (LTCCC) recently released alarming data on the state of nursing facilities across the United States, revealing that nearly one in four nursing homes (24.6%) qualify as "problem facilities." This term encompasses nursing homes that have received a one-star rating on the federal Five-Star Quality Rating System , are part of the Special Focus Facility (SFF) Program or are SFF candidates. These facilities are notable for their substandard care and persistent compliance issues.

National and Kansas-Specific Findings
The data paints a concerning picture of nursing facility care quality nationwide, and Kansas is notably worse than the national average. According to LTCCC's data, out of the 306 nursing facilities in Kansas, 25.2% are classified as "problem facilities", 59.8% of nursing facilities in Kansas are for-profit, and 75% of "problem facilities" in Kansas are for-profit.

The Five-Star Quality Rating System
The Centers for Medicare & Medicaid Services (CMS) utilizes the Five-Star Quality Rating System to aid consumers in comparing nursing homes. This system rates facilities on a scale from one to five stars, with five-star ratings indicating superior care and one-star ratings flagging the poorest quality. The effectiveness and accuracy of the CMS Five-Star Quality Rating System has been debated among long-term care advocates, residents, and their families. A star rating is composed of three parts: outcomes from the state inspection report, staffing, and quality measures.

For-Profit Facilities and Quality Concerns
The LTCCC report highlights a troubling correlation between for-profit status and lower-quality care. A federal government study , released in November 2023, concluded that for-profit nursing facilities tend to have lower quality ratings, fewer registered nurses, and more safety violations, prompting one to wonder if for-profit facilities prioritize financial returns over patient care. A February 2021 study from the National Bureau of Economic Research found that going to a facility owned by a private equity firm increased the chance that a resident would die by 10%, compared with living in another type of facility.

The Special Focus Facility Program
The SFF Program targets nursing facilities with a history of serious quality issues. Facilities are identified based on their performance over the last three standard health survey cycles and three years of complaint surveys. Points are assigned for deficiencies cited during inspections, with higher points given for more severe violations. Those facilities with the highest points become SFF candidates, marking them as requiring significant improvement. The methodology behind the SFF Program is the same as that used for health inspections within the Five-Star Quality Rating System. This rigorous approach ensures that only those facilities with the most concerning track records are selected for intensified oversight.

Implications for Consumers
The LTCCC's findings and data serve as a crucial reminder for consumers to be vigilant when selecting nursing facilities. The prevalence of "problem facilities", especially among for-profit institutions, underscores the importance of thorough research and consideration of a facility's rating and compliance history.

As always, if you would like Consumer Information Reports about any licensed long-term care facility in Kansas, feel free to call or email . There is never a charge for any of our materials.

At KABC, we will continue to advocate for increased staffing, quality care, and financial transparency within for-profit nursing facilities.

Advocacy in Action (June 2024): Recognizing World Elder Abuse Awareness Day

Fri, 21 Jun 2024 16:06:04 GMT

June 15th is recognized globally as World Elder Abuse Awareness Day , a crucial time to shed light on the often-hidden issue of elder abuse. Alarming statistics reveal that 1 in 10 older adults experience some form of abuse, neglect, or exploitation each year. As a community dedicated to advocating for the rights and well-being of older adults, it's essential to highlight the work being done and the ongoing challenges we face.

From July 1, 2022, to June 30, 2023, the Abuse, Neglect, and Exploitation (ANE) Unit tracked over 6,800 referrals to law enforcement agencies statewide—a significant 16 percent increase from the previous fiscal year. These referrals, originating from the Department for Children and Families (DCF), Adult Protective Services (APS), the Kansas Department for Aging and Disability Services (KDADS), and the Kansas Department of Health and Environment (KDHE), highlight the severity and prevalence of abuse in our communities. "Financial exploitation" remains the most reported allegation.

The Economic Crimes Unit, previously known as the Fraud and Abuse Litigation Division, played a pivotal role in addressing these issues. In the past fiscal year, they litigated 15 cases of elder and dependent adult abuse, resulting in over $625,000 in restitution. Additionally, they investigated 40 cases, reflecting their commitment to combating financial exploitation and securing justice for victims.

The Kansas Long-Term Care Ombudsman's annual report paints a troubling picture. Ombudsmen documented 120 complaints of abuse, neglect, and exploitation, including physical assaults, verbal abuse, and financial misappropriation. The report criticized the current reporting system, noting that calls to the ANE hotline often lack sufficient detail, and residents are seldom interviewed adequately. Moreover, facility staff frequently face intimidation or job loss when reporting abuse, creating a significant barrier to justice.

The report strongly recommends enhancing access to justice for older adults and addressing systemic issues within care facilities. As part of this effort, our Public Policy Coordinator, Barb Conant, serves on the Elder and Dependent Adult Abuse Prevention Council, working tirelessly to advise and make recommendations to the ANE Unit.

At KABC, we take the issues of abuse, neglect, and exploitation very seriously. We are committed to working alongside the State Long-Term Care Ombudsman and other community partners to ensure that justice is served and protections for older adults are strengthened.

Additionally, KABC offers an elder abuse toolkit booklet, providing comprehensive information and resources on recognizing and addressing elder abuse. This valuable resource is available for free on our website.

Let us use World Elder Abuse Awareness Day as a catalyst to continue our advocacy, support our community, and work towards a future where every older adult can live with dignity and safety.

Navigating In-Home Service Options: Resources Beyond Private Pay in Kansas

Wed, 12 Jun 2024 18:51:29 GMT

When it comes to finding the right in-home services for yourself or a loved one, navigating the myriad of options can be daunting. Fortunately, in Kansas, there are comprehensive resources available that extend beyond private pay companies, ensuring that individuals of all ages, abilities, and income levels can access the support they need. Here’s a closer look at some of these invaluable resources.

The Kansas Aging and Disability Resource Center (ADRC)

The Kansas Aging and Disability Resource Center (ADRC) serves as a one-stop shop for individuals seeking long-term service and support. Whether you are an older adult, a person with a disability, or a caregiver, the ADRC offers objective information and personalized counseling to help you make informed decisions about your care options.

Operated by the eleven Area Agencies on Aging (AAA) across the state, the ADRC provides:

Coverage Across Kansas: No matter where you live in Kansas, ADRC ensures you have access to a wide array of support options tailored to your individual preferences, strengths, and values.
Statewide Call Center: Reach out to knowledgeable staff for information, referrals, and assistance with community services via the statewide call center at 855-200-2372.
Functional Assessments: The ADRC conducts assessments to determine eligibility for Home and Community-Based Service (HCBS) programs and nursing facility placements.

Senior Care Act Program

The Kansas Legislature established the Senior Care Act program to support older Kansans who can live in the community with some assistance. This program is designed for residents aged 60 or older who have functional limitations in self-care and independent living. Services vary by county but typically include:

Attendant care
Respite care
Homemaker support
Chore services
Adult daycare

Participants contribute to the cost of services based on their ability to pay. The program is administered by the Kansas Department for Aging and Disability Services (KDADS) through the AAAs.

Older Americans Act (OAA) Programs

Enacted by Congress in 1965, the Older Americans Act (OAA) addresses the lack of social services for older adults in the community. The OAA offers:

Legal assistance
Caregiver support
In-home services
Transportation
Nutrition programs

These services are typically free or available on a contribution basis. Like the Senior Care Act, the OAA programs are administered by KDADS through the AAAs.

Medicare and Medicaid In-Home Services

If you are under a physician’s care and require home health care services, Medicare or Medicaid might cover these services for short-term needs, provided there is an established care plan. Coverage requires using a home health agency certified for Medicare and Medicaid services. Additional financial support may come from:

Private insurance
Medicare supplements
Long-term care insurance

Many home health agencies also offer private pay options for those needing additional or non-covered services.

Home and Community-Based Services (HCBS) Programs

For those needing more extensive support, the HCBS programs may be an option. To participate, you must:

Be approved for Medicaid (KanCare)
Meet the functional eligibility criteria

The initial assessment is carried out by the AAAs, such as the Jayhawk Area Agency on Aging for residents in Douglas County. HCBS programs are coordinated by Managed Care Organizations (MCOs) under KanCare, and care plans might include:

Adult Day Care
Personal Care Services
Personal Emergency Response
Home Telehealth
Medication Reminders
Enhanced Care Services, and more

The HCBS Frail Elderly (FE) Waiver is aimed at adults aged 65+ who meet the criteria for nursing home placement, are Medicaid eligible, and require assistance with activities of daily living.

Questions to Ask When Touring a Long-Term Care Facility

Thu, 30 May 2024 20:40:35 GMT

Choosing a long-term care facility can be a daunting experience. Most people have no idea where to begin. There are so many things to consider! So many questions! KABC has compiled a list of eight important questions to ask and have answered, to help make your decision a bit easier. For more information and additional tips, please check out our resources, “ Is This the Nursing Home to Choose? ” or “ Planning for Better Care. ”

1) What is the resident to staff ratio? During your tour, inquire about the number of staff in the facility vs number of residents. A higher staff ratio often means residents receive more personalized care and attention. It can also lead to better outcomes for residents including reduced rates of infection, fewer falls and improved quality of life.

2) How do you handle medical emergencies and provide ongoing care? Medical emergencies can happen at any time. What procedure does the facility have in place for handling emergencies while still providing ongoing care to other residents? Delays or inadequate response can have serious consequences for resident health and well-being. Don’t hesitate to ask! Your loved- one’s safety depends on it!

3) What types of recreational activities and social events do you offer? Quality of life extends beyond medical care. Ask about the activities and other events offered. Social isolation can have a negative impact on a person’s mental and physical health, so it’s important for residents to have opportunities for social engagement and connection. A vibrant community enhances residents’ well-being.

4) What safety measures are in place to prevent falls and accidents? Ensuring safety is paramount for residents in long-term care facilities. Falls are a serious concern, especially if call lights go unanswered. When touring, ask about staff

response times to call lights, and what protocols are in place to prevent falls. If a fall occurs, does staff call 911? Do they attempt to pick up the resident or wait for help? Is the fall reported to the Kansas Dept. for Aging & Disability Services? (FYI - reporting is mandatory.)

5) How do you ensure that residents receive personalized care plans tailored to their needs? During your tour, always ask about the process for creating individualized care plans. Advocate for person-centered care. How does the facility assess resident needs and preferences to make sure they receive the care they require and deserve in a dignified fashion?

6) What is the protocol for administering medications to residents? How do you assure accuracy and compliance? Accurate medication administration/management is vital for the health and safety of residents. Ask how the facility maintains accuracy in dosage and documentation. Understanding these processes can help assure your loved-one receives the right medication at the right time.

7) What are your dining options and meal plans offered, including any special/restricted dietary accommodations? Nutrition tailored to individual need, including religious/cultural belief, food preferences or medically-restricted diets is crucial for the well-being of any resident. Ask how these needs are met. Knowing your loved-one is getting the proper nutrition can provide peace of mind.

8) What types of therapies and rehabilitation services are available on-site for residents who require them? Fostering holistic well-being means addressing both physical and mental health needs in long-term care settings. Ask about the availability of physical, speech and occupational therapy services. Are they available in-house? Do you offer mental health support? Understanding these services can ensure the facility offers multidisciplinary care.

Advocacy in Action (May 2024): Nursing Home Minimum Staffing Rule

Wed, 15 May 2024 19:36:59 GMT

Recently, we have been disheartened by legislative actions that undermine efforts to improve staffing standards in nursing homes, particularly in Kansas. H.R. 5796 , co-sponsored by Representatives Tracey Mann, Jake LaTurner, and Ron Estes, seeks to disapprove a federal staffing standard minimum rule that would greatly benefit residents of nursing facilities. Similarly, S.3410 , co-sponsored by Senators Roger Marshall and Jerry Moran, aims to address the same issue in the Senate. If passed, these legislations would prohibit the Secretary of Health and Human Services from implementing the final settings rule for minimum staffing in nursing facilities.

The Nursing Home Minimum Staffing Rule finalized on April 22nd will require all nursing homes that receive federal funding through Medicare and Medicaid to have 3.48 hours per resident per day (hprd) of total staffing, including a defined number from both registered nurses (0.55 hprd) and nurse aides (2.45 hprd). It will also require facilities to have a registered nurse onsite 24 hours a day, seven days a week.

At the heart of this issue is the need for adequate staffing levels in nursing homes. Research consistently shows that higher staff-to-resident ratios lead to better outcomes for residents, including reduced rates of infections, fewer falls, and improved overall quality of life. By opposing the implementation of a federal staffing standard minimum rule, these legislators are failing to prioritize the well-being of vulnerable older adults in Kansas and across the nation.

Additionally, it's disappointing to see the nursing home industry diverting attention away from the real issue at hand. Instead of lobbying against essential staffing regulations, they should be directing their efforts towards hiring and retaining qualified staff, ensuring fair wages, and creating supportive work environments. Working in a nursing facility is a skilled job that deserves respect, and addressing the staff shortage requires dedicated time and attention.

However, amidst these challenges, we find hope in the actions of the Biden administration and advocacy organizations who have pushed for measures to improve staffing standards in nursing homes. We applaud their commitment to addressing this critical issue and urge them to continue their efforts.

In Kansas, the Medicaid program spends $95,000-$108,000 annually per resident for often sub-standard care. The state allocates approximately $862 million to long-term care facilities, yet Kansas ranks 46th in addressing the shortage of nurses and nurse aides. Taxpayers deserve greater value for their money, and older Kansans deserve improved long-term care options given the consistently poor performance of many in this industry.

We cannot afford to ignore this problem any longer. To effectively address the staffing shortage problem in Kansas, we must also look to other states for guidance and best practices. By learning from successful initiatives implemented elsewhere, we can tailor solutions to suit the unique needs of our state's long-term care facilities. Furthermore, it's crucial to foster a collaborative effort that includes the voices of long-term care residents and staff in these discussions. By actively involving those directly impacted by staffing challenges, we can develop more comprehensive and effective strategies to ensure quality care for all individuals in nursing homes.

We encourage our readers to act. Contact your Kansas Congressional delegates and share your stories about why staffing is critical to improving quality metrics across the board.

Your voices matter, and together, we can make a difference in the lives of countless individuals in long-term care facilities.

Comparing Nursing Facilities and Assisted Living: Understanding the Key Differences

Fri, 19 Apr 2024 16:56:55 GMT

When considering long-term care options for yourself or a loved one, it's essential to understand the differences between nursing facilities and assisted living facilities. While both offer supportive environments for individuals needing assistance with daily activities, they serve distinct purposes and cater to varying levels of care needs. Let's delve into the comparative aspects of these two types of facilities to help you make an informed decision.

Medical Services:

Assisted Living: Assisted living facilities primarily focus on providing assistance with daily activities while offering varying levels of medical attention. Residents may receive support such as transportation to medical appointments and assistance with medication management. Additionally, specialized care areas may be available for individuals with conditions like dementia. Assisted living facilities are not regulated by the federal government but, in Kansas, are licensed by the Kansas Department for Aging and Disability Services.
Nursing Home: In contrast, nursing homes, also known as skilled nursing facilities, offer round-the-clock, 24-hour medical care, typically with more staff than an assisted living facility. A nursing home setting may be appropriate for individuals who need extended post-operative care, complex medical monitoring, nursing, medical, social, and rehabilitative care. Moreover, nursing homes provide rehabilitative services such as physical, occupational, respiratory, and speech therapy for residents in need. Nursing homes are subject to more government oversight by both the state and federal governments.

Living Space:

Assisted Living: Residents of assisted living facilities typically reside in individual or shared apartments equipped with kitchenettes, bedrooms, and living areas. Common spaces encourage social interaction and participation in communal activities, including dining areas, activity rooms, salons, and gardens or outdoor walkways . There may be accommodations for pets.
Nursing Home: Nursing homes typically provide individual or shared (semi-private) rooms with en-suite bathrooms. While the living arrangements may be more compact, residents still have access to common areas for meals and activities.

Assistance with Daily Activities:

Assisted Living: Assisted living facilities offer light support with daily tasks like bathing, dressing, and meal preparation, tailored to the residents' needs. Laundry, housekeeping, and meal services are also available.
Nursing Home: Residents of nursing homes often require more extensive assistance with daily activities. Staff members should assist with personal care tasks, medication management, meal preparation, and housekeeping.

Recreational Activities:

Assisted Living: Assisted living facilities prioritize providing a wide range of activities to promote physical and social engagement among residents. From exercise programs to creative expression and volunteering opportunities, these facilities foster a vibrant community atmosphere.
Nursing Home: While recreational activities are also offered in nursing homes, they may be more limited in scope. However, supervised exercise sessions and various enrichment activities contribute to residents' overall well-being.

Meals:

Assisted Living: Residents in assisted living facilities may have the option to cook in their own kitchenettes or dine in communal dining rooms. Meal delivery services may also be available for added convenience and may require an additional cost.
Nursing Home: In nursing homes, dieticians prepare meals for residents, considering their dietary preferences and restrictions. Residents can choose to dine in communal spaces or have meals served in their rooms.

Cost and Insurance Coverage:

In 2023, the average cost for a semi-private nursing facility room in Kansas was $7,483. For an assisted living room, the median cost was $5,850.

Nursing home care tends to be more expensive than assisted living, with costs varying based on factors like location and level of care required. Medicare may cover some expenses for nursing home care (up to 100 days) under certain conditions, whereas assisted living is typically not covered by Medicare. Because Medicaid is a joint federal and state public health insurance program administered by individual states, coverage for assisted living services varies. Medicaid is available for those who need nursing home care but can't afford it or have a restricted income. Medicaid will pay for nursing home care for persons who require that level of care and meet the program's financial eligibility requirements. A person can have no more than $2,000 of "countable" assets in Kansas to qualify for Medicaid.

Overall, understanding the distinctions between nursing facilities and assisted living facilities is crucial for selecting the most suitable option based on individual needs and preferences. Whether prioritizing medical care, independence, social engagement, or cost, there's a long-term care solution tailored to meet diverse needs. It's advisable to explore available resources, consult with healthcare professionals and KABC, and carefully evaluate each facility's offerings before deciding. KABC is here to help! We offer free Consumer Information Reports on all licensed adult care facilities to help you make an informed decision.

Advocacy in Action (April 2024): The Abuse of Antipsychotic Medication

Mon, 08 Apr 2024 14:36:34 GMT

The latest data from the Long-Term Care Community Coalition paints a troubling picture of the prevalence of antipsychotic drug use among nursing home residents nationwide. Shockingly, over 250,000 residents are being administered these dangerous drugs, often without clinical justification. Antipsychotic drugs are too frequently used as chemical restraints, particularly among individuals with dementia or dementia-related diagnoses. Instead of receiving the services they are entitled to under federal law to live comfortably, residents are being sedated, robbing them of their autonomy and quality of life.

Antipsychotics are drugs that are used to treat symptoms of psychosis such as delusions (for example, hearing voices), hallucinations, paranoia, or confused thoughts. They are used in the treatment of schizophrenia , severe depression and severe anxiety .

In Kansas, the situation is no less alarming. Approximately 117 nursing facilities out of 300 in our state have 20% or more of their residents on antipsychotic medication. CMS Region 7 (serves Iowa, Nebraska, Missouri, and Kansas) had the highest regional rate (24.7%). This misuse of medication not only violates the rights of residents but also puts their health and well-being at risk with potentially severe consequences.

Antipsychotic drugs are associated with a host of adverse outcomes in older adults, including heart attacks, strokes, Parkinsonism, falls, and even death. It is clear that the overuse of these drugs constitutes a serious threat to the safety and dignity of nursing home residents.

Furthermore, the data from the Long-Term Care Community Coalition underscores the need for increased oversight and accountability within the long-term care industry. The fact that non-risk-adjusted data show such a high prevalence of antipsychotic drug use, coupled with a significant increase in potentially fraudulent schizophrenia diagnoses ( 194% increase between 2015 and 2019 ), is deeply concerning.

In the " Final Report of the Kansas Senior Care Task Force to the 2023 Kansas Legislature ", the Kansas Senior Care Task Force, consisting of legislative and non-legislative members, recommended leveraging technology to connect highly specialized geriatric psychiatric prescribers across the state for consultation. The task force also recommended improving upon existing standard training and education by providing targeted education for surveyors, direct care workers, providers, prescribers, long-term care providers and caregivers on the use of prescribed psychotropic medication for older adults with dementia or geriatric behavior health conditions.

We encourage all individuals to utilize the data provided by the Long-Term Care Community Coalition. In the data spreadsheet, you can filter by state and county.

Thank you for your ongoing support in our mission to advocate for the rights and well-being of those in long-term care.

Alarming Rate of Antipsychotic Drugging in US Nursing Homes

The Women Who Launched Long-Term Care Advocacy in Kansas

Fri, 01 Mar 2024 18:02:47 GMT

Spearheaded by the activism of Anna "Petey" Cerf, a "band of six" women from the Lawrence and Topeka communities came together with a shared vision: to improve the quality of long-term care for older adults and adults with disabilities in Kansas nursing homes. They were appalled by the poor conditions and mistreatment that they witnessed in many of these facilities and knew that something had to be done.

These women, Jessie Branson, Anna "Petey" Cerf, Lesley (Lee) Ketzel, Harriet Nehring, Katie Pyle, and Bryona Wiley, were not content to simply accept the status quo. They refused to turn a blind eye to the suffering of those who were most vulnerable and were determined to make a change.

Together, they founded Kansans for Improvement of Nursing Homes in 1975 and launched a reform movement through political advocacy, lobbying for changes to the laws and regulations that governed nursing homes.
Their efforts were not always easy. They faced opposition and hostility from those who were resistant to change and had to fight tirelessly to make their voices heard. But they persevered, driven by a deep sense of compassion and a commitment to making a difference.

The organization has evolved over the years (even changing their name to Kansas Advocates for Better Care), but the significant impact on the lives of countless individuals in Kansas remains. KABC continues to advocate for policies and regulations that improve the quality of care in all long-term care settings and provide support and resources to individuals and families who are navigating the complex world of long-term care.
The legacy of these six women is a testament to the power of advocacy and the impact that dedicated individuals can have on their communities. They refused to accept things as they were and fought for change, making a profound difference in the lives of so many while emphasizing the fundamental right to be treated with dignity and respect.

As we celebrate Women's History Month this March, let us remember the courage and determination of these trailblazing women, and let us recommit ourselves to the fight for better care for all. Their legacy continues to inspire us today.

What is Memory Care?

Fri, 09 Feb 2024 19:39:53 GMT

Memory Care is defined as “Specialized Support for people with dementia or Alzheimer’s.” Makes sense, doesn’t it? We at KABC hear that some facilities are using the term “Memory Care” as a marketing tool rather than an actual service provided.

Memory Care is NOT a license category for long-term care. Memory care can be provided in assisted care type facilities or in a nursing facility. Many have special memory care “neighborhoods” for residents with dementia. There are also stand-alone memory care facilities.

Memory care is designed to provide a safe, structured environment with set routines to lower stress for people with Alzheimer's or dementia. Employees provide meals and help residents with personal care tasks, just like the staff at an assisted living facility, but they are also specially trained to deal with the unique issues that often arise as a result of dementia or Alzheimer's. They check in with residents more frequently and provide extra structure and support to help them navigate their day.

If you learn your loved-one is in need of memory care in a long-term care facility, here are a few questions to ask:

Is facility staff specially trained to manage behaviors? Is training on-going?
Is there a locked unit or safe space for residents, to assure they are not able to get outside and in harm’s way?
What is your protocol if a resident becomes agitated or disruptive? (antipsychotic meds are not the answer.)
What is the ratio of staff to residents?

Contact KABC for more information about memory care facilities in Kansas. We also have a great resource, “Positive Approaches for Loved-Ones with Dementia” in print and online in English & Spanish.

We’re here to help!

Navigating Medicaid and Medicare Coverage for Long-Term Care Costs

Thu, 01 Feb 2024 20:04:42 GMT

On January 10th, we hosted a free Zoom training session, "Navigating Medicaid and Medicare Coverage for Long-Term Care Costs," in collaboration with Weber Elder Law Office and Karen Weber, JD-an expert with 28 years of experience in elder law, licensed in both Kansas and Missouri.

Karen covered key topics like "exempt assets," "spend down" strategies, "division of assets," and demystified long-term care insurance. The session attracted around 70 attendees.

If you missed it, catch the recording Navigating Medicaid and Medicare Coverage for Long-Term Care Costs - YouTube on our YouTube channel. Karen's presentation slides and handouts are also available below.

A big thank you to Karen Weber for sharing her expertise. Stay tuned for more empowering events from KABC as we continue to simplify the complexities of Medicaid and Medicare coverage.

Advocacy in Action ~ January 2024

Wed, 24 Jan 2024 14:48:27 GMT

The 2024 Kansas Legislature kicks off its 2024 session on January 8 with decisions about the state’s budget in general, funding special education, a proposed flat tax and Medicaid expansion looming large.

2024 is the second year of the legislature’s two-year biennium. The legislature works on a two-year cycle meaning that with some exceptions most legislation introduced in the first year (2023) remains alive through the end of the second year (2024). Also a factor in the dynamics of this session is that all 165 legislative seats – 125 House members and 40 Senators – are up for election this year.

Click here to read the full report. January 2024 Advocacy in Action

KanCare Oversight Testimony

Wed, 11 Oct 2023 17:48:53 GMT

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KABC Director Dan Goodman provided testimony to the Robert Bethell Joint Committee on HCBS and KanCare Oversight asking the committee to recommend several opportunities to improve and innovate existing services to improve the lives for older Kansans.

Nursing Facility Reimbursement Rate Methodology

Thu, 21 Sep 2023 17:48:53 GMT

Last week, the Kansas Legislature held its Special Committee meetings on Nursing Facility Reimbursement Rate Methodology. There was some discussion about ways we could improve LTC for Kansans through reform and rate change administration. KABC spoke to diversification of LTC funding and restoring safety net supports to compliment waiver services.

Read Dan Goodman’s testimony and talking points .

KABC Recommendations for FY 2024 KDADS Stakeholder Budget Hearing

Mon, 14 Aug 2023 17:48:53 GMT

On August 14th, KABC Executive Director Dan Goodman provided testimony on the KDADS 2024 budget.

You can read the entire document here.

The White Paper referred to in the testimony can be found here.

KABC Testimony 8/2/23

Wed, 02 Aug 2023 15:08:53 GMT

On August 2nd, KABC Executive Director Dan Goodman provided testimony to the Robert Bethell Joint Committee on HCBS and KanCare Oversight.

Read the entire testimony here 8-2-23 HCBS Testimony

Advocacy in Action ~ April 2023

Wed, 05 Apr 2023 15:11:24 GMT

The 2023 Kansas legislative session came to a close Friday, April 29, one day shy of its statutorily allowed 90-day schedule. The legislature returned the last week of April after a short break. Budget conference committees met Monday and Tuesday to negotiate the last of the appropriation item.

The full legislature reconvened Wednesday, spending the rest of the week debating conference committee reports, 19 attempts to override the governor’s vetos and passing the final State budget. The week was marked with contentious floor debates as the legislature overrode 9 of Gov. Kelly’s vetoes, sustaining 10, and hotly debating the decisions of conference committees.

Not only did they adjourn the regular session, but they also adjourned sine die, meaning the regular session is over. Generally, both chambers will return several weeks after adjournment giving the governor an opportunity to act on the remaining legislation passed during the veto session. Unless a special session is called, the Kansas Legislature will not convene again until January 9, 2024.

Click here to read the full report. April 2023 Advocacy in Action

HB 2246 ~ Charlie’s Bill ~ Testimony

Thu, 09 Feb 2023 16:14:42 GMT

On February 9, 2023, KABC’s Executive Director Dan Goodman provided the following testimony to the House Judiciary Committee. “Charlie’s Bill” now known as HB 2246 has been a high priority for Kansas Advocates for Better Care for the past few years.

Read the entire testimony here: 2023 Feb 9 HB 2246 Testimony

KABC Budget Recommendations for FY 2023

Wed, 10 Aug 2022 15:28:43 GMT

KABC Executive Director Dan Goodman had the opportunity to present FY 2023 budget recommendations to Kansas Department for Aging and Disability Services (KDADS) leadership.

Read his full testimony: KABC Budget recommendations for FY 2023